update

[lindaincolorado]

Hi All,
last Thurs I had #112 I am infused every 56 days for approx 1 1/2 years .
Thank G-d and Tysabri I am stable!

[ru4cats]

Hi All,
last Thurs I had #112 I am infused every 56 days for approx 1 1/2 years .
Thank G-d and Tysabri I am stable!

I'm having #84 on Friday, but am still at 28 days. However due to age, I'm asking my neurologist about extended dosing at my February appointment. I switch to Medicare on Feb. 1.

I'm with you; thank G-d for Tysabri! Today I exercised in my therapy pool for an hour, removed, washed, and remade the bed, began my 2nd batch of lefsa, and made chicken soup and biscuits from scratch. I have no idea what got in to me, but I felt great!

If I end up turning positive, I know I can stay on Tysabri thanks to you!

[pennstater]

Relative newbie at #54 and fortunate to still be JCV negative! I love seeing these posts. It is great to hear how stable some folks remain when on Tysabri, even with the extended period for dosing.

[REG53]

Happy for you Linda.

[Seasha]

Way to go, Linda! And all of you!

[lindaincolorado]

Thank you all
Ru4cats, (yes, I have one )
you busy, busy gal I am glad for you ! I do water aerobics, then play cards and sometimes go out to dinner. I am so grateful I can live my life like this. On a day I make mondel bread (for those who do not know what this is, a type of biscotti )it rather wipes me out (I make enough for 3 or 4 families) and I do not do much else but, once again, so grateful I can do this

We may have ms but it does not have us !!!

[KatieAgain]

Newby too...I think I am on infusion # 40 or so. 🌷🌷🌷

[lindaincolorado]

Yesterday 1/31 was my girlfriends 69th birthday (we've celebrated with each other for 58 years) and my 113th infusion.. we both had a lot to celebrate

I am a very grateful Ty user

[lindaincolorado]

Yesterday #113

Now waiting for the results of my JCV test..

[lindaincolorado]

Hi All,
last week I had #118 MRI stable, waiting still for JCV test (which the 2 b4 it were NEGATIVE) and R leg now dragging more
My biochemist son thinks that I can go between indeterminate and negative depending on how well my immune system is fighting off the virus-this makes sense to me!

Happy Thanksgiving-I have so much to be thankful for

[lindaincolorado]

#121

April 2018 my 121 infusion
What a blessing!

[Seasha]

A blessing indeed and so happy for you! You should be a poster child for Ty, Linda

[REG53]

I agree, it is a blessing and I am happy you are doing well.

[lindaincolorado]

Thanks Seasha and REG53