Just needing some help and advice...

[Lockester049]

Good Day,

I have not been diagnosed, but I am having a very rough time right now. I am 46 years old and have young children, and have to use my hands to hold myself on objects to walk around. I keep falling down. My legs will go into cramps and get very stiff when on them to long. I am constantly in a foggy state, and can't remember, and loose track of thought. My arms and mid section are always hurting and have muscle twitching. My right eye is going bad. I have headaches and sometimes it feels like worms crawling around in my head. That makes the pain level go higher. I have been to my practitioner and he said Fibromyalgia then sent me to a rheumatologist. They said that my vitamin D is deficiency that I am at 14 and should be 40 or above, and I don't have Fibromyalgia. Now she is sending me to a neurologist this Friday. Just was wanting to know if anyone has any theories..

[dastardly]

Hi Lockester049 sounds like you are having a lousy time, I think you are on the right track seeing a neurologist to sort out your problems, the problem with MS is all the symptoms can be something else, could you have MS, sure but no one here can DX you, see your neurologist he/she will run some tests and go through other processes to find out and if you do have MS its not the end of the world now is the best time to have it as there seems to be a lot of research and treatment going on, let us know how you get along with the Dr's also get a cane or walker to help you get around, you don't need broken bones as well, good luck Craig

[Lockester049]

Thanks Dastardly for your reply, it's nice to find people that care and don't seem to think you are faking. This is miserable, and I don't wish this on my worst enemy. Just holding a phone makes you hands and arms and shoulders and neck hurt. All these symptoms just keep getting worse since my anterior cervical decompression with fusion on 11/04/2015.

[Mamabug]

Good Day,

I have not been diagnosed, but I am having a very rough time right now. ...

I don't know enough about your "rough time", but, I'm wondering if you're in a flare. It could be MS, but other illnesses also have flare-ups, so, even if it's something else, if it's a flare, your symptoms might be temporary. Sometimes, flares are treated with steroids. Your doctor should be able to rx that, if indicated. Or, the neurologist, after that appointment.

I'm glad your doctor is sending you to some specialists. Part of diagnosing MS involves ruling out other illnesses. It sounds like fibromyalgia was ruled out so now other illnesses can be looked into. MS can take a long time to diagnose, because lots of other illness have similar symptoms and they often mimic each other.

A neurologist should be able to dx MS, and knows so much about general neurology that they are also good at looking at other possibilities.

I recommend an MS specialist, as well, if MS is being considered, as they have much more knowledge and experience with diagnosing and treating MS, in addition to all of the general neurology training.

[SNOOPY]

All these symptoms just keep getting worse since my anterior cervical decompression with fusion on 11/04/2015.

Have you discussed your symptoms with the Dr. who did your surgery? You are only a little over a month post infusion. It can take a year to know if there is any permanent nerve damage.

[SNOOPY]

All these symptoms just keep getting worse since my anterior cervical decompression with fusion on 11/04/2015.

Oops! I misread the year as 2016 in my other post. I would still talk to the Dr. that did your surgery to make sure your symptoms are not due to your previous surgery or any new issues with your back. Nerve damage from spine surgery has the possibility of being permanent

[Lockester049]

Thanks for all your information. I will let you all know the outcome tomorrow. I will ask the neurologist if I should get back with my surgery doctor to ask questions. She might want to find out herself. Again, thanks and all information is useful in my case.

[hunterd]

just a Help full and eye-opening ( sometimes) hint, keep a complete Journal. Write everything down no matter how inconsequential you think it is.. Write down your complete diet leaving absolutely nothing out.. Write down your daily activities, again, leaving nothing out. This can prove to be an extremely important "pieces of the puzzle" to your doctor.. I wish you the best of luck.

[jamilea]

And I hope they are doing something to get your vitamin D level where it should be. I'm so sorry you are going through this. Hugs.