Hi all! Have been looking for a community to hang and vent and thankfully found this site! A little about me. I was diagnosed with relapsing-remitting multiple sclerosis in the spring of last year after my 2nd occurrence of optic neuritis. First occurrence was in 2014, second in 2015. I started on Plegridy, a 2x/month injection of beta-inferon and have had no relapses over the last year. No longer being in limbo is more of a relief than you can possibly imagine.
MS is an exhausting mindgame. Once you get diagnosed, you read all the symptoms that people have and start to think everything you feel is a new relapse. I deal with MS Fatigue, incontinence, and brain fog all the time. I also have to be careful not to get overheated or stressed out or take a shower.
It's only been a year since my official diagnosis, and I'm lucky to have a decent PPO and live in a big city with many doctors and good hospitals. If I had lived in another country or a smaller town, I may still not be diagnosed. That being said, medication, MRI's and frequent doctor visits are very expensive and stressful which is why i'm here to be with a community who understands my struggles. ha.
Nice meeting you all! Looking forward to joining the discussion!
MS is an exhausting mindgame. Once you get diagnosed, you read all the symptoms that people have and start to think everything you feel is a new relapse. I deal with MS Fatigue, incontinence, and brain fog all the time. I also have to be careful not to get overheated or stressed out or take a shower.
It's only been a year since my official diagnosis, and I'm lucky to have a decent PPO and live in a big city with many doctors and good hospitals. If I had lived in another country or a smaller town, I may still not be diagnosed. That being said, medication, MRI's and frequent doctor visits are very expensive and stressful which is why i'm here to be with a community who understands my struggles. ha.
Nice meeting you all! Looking forward to joining the discussion!
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