I have been on Tysabri for 18 months, every 28 days infusion.
I am currently experiencing my first ever ear infection and it is a doozy. Middle and outer ear. Pain was excruciating, low fever, vomiting, sleeping 20 hours a day. 3 antibiotics and 6 days later I am still experiencing pain and tummy upset.
This experience has been very frightening to me. Saw 3 docs.
1st PC, "Take this antibiotic and you will feel better in a day"...no. Pain so bad throwing up. So 2 days later called PC said go to ER.
2nd doc, ER, pain was horrific, take this pain reliever put in a wick in ear and put drops in, "you should feel better in a day or two". Not so. Was told to see ENT in a few days.
3rd Doctor ENT, "you shouldn't have come back to have wick removed so soon but let me look... AHHH, need to remove wick and give you different wick in your ear and different drops". Me, crying in pain as the wick is removed and ear is vacuumed out.
My MS questions:
Is this normal recovery with strong antibiotics?
Does Tysabri have something to do with getting my first ever ear infection (I am 58!)?
Is Tysabri making me have a slower response to antibiotics?
I work in a hospital (Pastoral Care for Inpatient Hospice), is this too dangerous an environment on Tysabri?
Last one, Anyone have a MS doc in Chicago? Mine left the practice and I am not comfortable with new guy that inherited me. Makes me feel like the "red-headed stepchild".
Thank you.
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