Hi,
Having failed every drug I've tried and had 14 years of an MS drug nightmare, my Neuro has now done an NHS referral to Kings College Hospital London to start the assessment for my suitability for their HSCT trial.
I was dx RRMS in 1994, 3 years after first relapse in 1991 when in was 17.
I did 8 years on no drugs as none were available and I had a 7 year remission. Then Copaxone wasn't strong enough, Avonex bombed my WCC, 3 times showing I can't tolerate interon, Tysabri-allergic, Copaxone (again) as MS became highly active RRMS 2012 and there were no other drugs here in U.K. Then I got a freak random case of Necrotising Fasciitis from an injection site (million to one) so more more needles. Then Tecfidera, Lymphocytes 0.5 after 5 months -,never recovered, stopped Dec 2016.
Been waiting all this year for Lemtrada, but I'm one of the lucky souls who's lymphocytes rebound slowly (still only 0.8) so can't have it.
There are many many hoops and jumps to get through before I know for sure if I am definitely getting HSCT, but if I do, I will share info here with everyone x
Having failed every drug I've tried and had 14 years of an MS drug nightmare, my Neuro has now done an NHS referral to Kings College Hospital London to start the assessment for my suitability for their HSCT trial.
I was dx RRMS in 1994, 3 years after first relapse in 1991 when in was 17.
I did 8 years on no drugs as none were available and I had a 7 year remission. Then Copaxone wasn't strong enough, Avonex bombed my WCC, 3 times showing I can't tolerate interon, Tysabri-allergic, Copaxone (again) as MS became highly active RRMS 2012 and there were no other drugs here in U.K. Then I got a freak random case of Necrotising Fasciitis from an injection site (million to one) so more more needles. Then Tecfidera, Lymphocytes 0.5 after 5 months -,never recovered, stopped Dec 2016.
Been waiting all this year for Lemtrada, but I'm one of the lucky souls who's lymphocytes rebound slowly (still only 0.8) so can't have it.
There are many many hoops and jumps to get through before I know for sure if I am definitely getting HSCT, but if I do, I will share info here with everyone x
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