Originally posted by melody60
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Hi Melody60, Ive had similar experiences with my last two neuros. I had a very good neuro but had to leave her due to insurance changes. She dealt with everything concerning my MS. Whether it was fatigue, pain, depression, medications, physical, mental, psychological. She was very proactive when it came to the disease. She taught me to look out for things before they even occurred. And she didn't ignore my questions or concerns.
My last two docs, in my opinion, treated my situation like "well you do have MS for goodness sakes, what do you expect?". They didn't deal with anything other than the DMDs. And one couldn't even get the new order for Tecfidera started for me. Excuse after excuse from his office. And Ive been dealing with a lot of fatigue recently and don't have the energy or patience to deal with continuous calling the office about it. The other doctor was in a large MS center but she also didn't address my other issues. My primary has been dealing with things like pain management (currently Im on Tylenol and Ibuprofen). Sometimes I take Gabapentin and Baclofen, but not daily because they cause leg weakness. He also gave me a prescription for a cane because he was concerned about my walking. He completed my SSDI forms because her RN filled out the papers incorrectly (the doc wasn't even aware my paperwork had been completed by her RN that I had never met).
Another time, she basically accused me of taking the wrong dose/too much of one of my meds. Instead of saying, send me a copy of the bottle label or call and read it to me when you get home, she looked up from computer at me like "you don't know what you're talking about", laughed and said that wasn't possible, that dose was too much. So when I got home I took a screen shot and sent it to her. She didn't seem to acknowledge that I had already lowered the dose myself because of how it made me feel, she seemed stuck on insisting that it was never written at the original dose. When I tried to switch MDs in her office after a year of being ignored, I was told that their policy was not to switch within their office and that I needed to find a MD elsewhere. I understand that the MD cant fix all my issues. But at least, address them and not push me aside because, "You don't look like you have MS".
Right now, I feel just felt out all alone. I feel like Im suffering in silence with my symptoms, but like you, my MRIs haven't changed for about 5 years. Hopefully in Oct, I will be able to return to my previous MD. I know she can't cure me or even correct all my symptoms, but I trust that she will do her very best to help me. And that's all I ask for from a doctor. I hope your visit in Oct goes better for you and you get your issues addressed. I don't think you're griping and I understand your frustration. I don't understand being a MS specialist, and not addressing all issues with the disease. Im just saying!!
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