I’ve been on Gilenya for six months. Before I was onRebif for 12 years but had to stop.
When I went to see my Nuero recently, he told me that recentblood work revealed that I had the JC virus. He didn’t have the results of the index value on file. Two-three days later I get a call from myNuero’s office telling me that my index value is 3.28.
Since being positive for JCV is linked to a greaterchance of coming down with PML (if you’re taking an immunosuppressant drug likeGilenya) I’d like to know if anyone can help me figure out the odds of medeveloping PML with a 3.28 index value.
I have a call in for my Nuero but he’s not the quickcalling type. He’s also kind of vague with his answers. In our last visit he mainly stressed theclose monitoring that would be done because of the JCV result. However, he did say that my JCV index valuewould determine the odds of me getting PML.
Thanks
Lucia
When I went to see my Nuero recently, he told me that recentblood work revealed that I had the JC virus. He didn’t have the results of the index value on file. Two-three days later I get a call from myNuero’s office telling me that my index value is 3.28.
Since being positive for JCV is linked to a greaterchance of coming down with PML (if you’re taking an immunosuppressant drug likeGilenya) I’d like to know if anyone can help me figure out the odds of medeveloping PML with a 3.28 index value.
I have a call in for my Nuero but he’s not the quickcalling type. He’s also kind of vague with his answers. In our last visit he mainly stressed theclose monitoring that would be done because of the JCV result. However, he did say that my JCV index valuewould determine the odds of me getting PML.
Thanks
Lucia
Comment