I am in desperate need of communication with people in the same situation as me, whether you are diagnosed or not! So excuse me while I vent!
I have been having many weird symptoms with normal blood testing. My main symptom though is the very common extreme fatigue which attributes itself to nothing specific! Second worst is severe dizziness/vertigo that is usually associated with an uncomfortable feeling in my neck and head. Sometimes it feels like I can't hold my head on my neck and I get nauseous just trying to sit upright. My body is usually not in pain but it's usually just weak as if I have the flu, for instance there are many times now where I can't open something easily because my grip is weak. I've got memory problems and fogginess to the point where I'm other people are noticing and my boss said I was acting "spacey" last week, and that I asked him the same question four times. Let's add urinary problems, jerkiness in hands, tingling in feet, balance issues and other little things it starts to get annoying. I don't want to write a bunch.
I had been thinking I had diabetes/lupus/hypothyroidism or even a vitamin deficiency but those all came back normal. Unrelated, I had an MRI done to see if I had a prolactinoma (pituitary tumor that causes high prolactin and irregular periods) and nothing was found. However they did add that 'scattered subcentimeter foci of T2/FLAIR hyperintense signal are seen in the periventricular white matter' that are 'significantly more than would be expected for someone my age' (25yr). Whatever that means! He suggested a heart defect or vessel disease. The nurse practitioner I've been working with (no primary yet) ordered the MRI for me since my OBGYN moved without putting in the order, and was nice enough to order testing for my heart. My heart looks fine. I recently went to the ER with the vertigo/dizziness and neck pain and they referred me to a neurologist. So I'm waiting on that.
I guess all that to say I don't care WHAT I have, or if there is more than one thing, but I am over having it. If any of that sounds like your MS or another disease you know of, let me me know. If it doesn't sound familiar, please still respond to me because I don't want to overcomplain to my boyfriend, and I definitely don't want to be taking about it with anyone else! Not at this point anyway.
Phew...
I have been having many weird symptoms with normal blood testing. My main symptom though is the very common extreme fatigue which attributes itself to nothing specific! Second worst is severe dizziness/vertigo that is usually associated with an uncomfortable feeling in my neck and head. Sometimes it feels like I can't hold my head on my neck and I get nauseous just trying to sit upright. My body is usually not in pain but it's usually just weak as if I have the flu, for instance there are many times now where I can't open something easily because my grip is weak. I've got memory problems and fogginess to the point where I'm other people are noticing and my boss said I was acting "spacey" last week, and that I asked him the same question four times. Let's add urinary problems, jerkiness in hands, tingling in feet, balance issues and other little things it starts to get annoying. I don't want to write a bunch.
I had been thinking I had diabetes/lupus/hypothyroidism or even a vitamin deficiency but those all came back normal. Unrelated, I had an MRI done to see if I had a prolactinoma (pituitary tumor that causes high prolactin and irregular periods) and nothing was found. However they did add that 'scattered subcentimeter foci of T2/FLAIR hyperintense signal are seen in the periventricular white matter' that are 'significantly more than would be expected for someone my age' (25yr). Whatever that means! He suggested a heart defect or vessel disease. The nurse practitioner I've been working with (no primary yet) ordered the MRI for me since my OBGYN moved without putting in the order, and was nice enough to order testing for my heart. My heart looks fine. I recently went to the ER with the vertigo/dizziness and neck pain and they referred me to a neurologist. So I'm waiting on that.
I guess all that to say I don't care WHAT I have, or if there is more than one thing, but I am over having it. If any of that sounds like your MS or another disease you know of, let me me know. If it doesn't sound familiar, please still respond to me because I don't want to overcomplain to my boyfriend, and I definitely don't want to be taking about it with anyone else! Not at this point anyway.
Phew...
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