I'm really hating how MS is bringing a lot of disappointment to my life.... When I can't do the things I used to, it not only is disappointing to me but others...family, friends, coworkers, etc. That makes it that much harder when I see they are also disappointed....It just piles on top of what I'm already going through.
I know I'm doing the best I can but sometimes I don't think they see that>> "I look so good" - yeah, but you can't see my brain and spinal cord ....yeah, It's like having a nice shiny, spiffy looking car that bogs down when you step on the gas because the engine isn't working properly. Yeah - I'm not "playing it up for sympathy....really" -- I guess it may seem like it whenever I'm having a good day and keeping up on top of stuff and then have a relapse..."but you weren't able to walk as fast last week" -- yeah, that's why it's called relapsing, remitting...
Please feel free to post your own frustrations with how MS has brought disappointment to your life... I usually like to keep on the bright side and be grateful for the things I can do ...but hey, the sun can't shine all the time...sometimes you have to acknowledge your feelings and vent
I know I'm doing the best I can but sometimes I don't think they see that>> "I look so good" - yeah, but you can't see my brain and spinal cord ....yeah, It's like having a nice shiny, spiffy looking car that bogs down when you step on the gas because the engine isn't working properly. Yeah - I'm not "playing it up for sympathy....really" -- I guess it may seem like it whenever I'm having a good day and keeping up on top of stuff and then have a relapse..."but you weren't able to walk as fast last week" -- yeah, that's why it's called relapsing, remitting...
Please feel free to post your own frustrations with how MS has brought disappointment to your life... I usually like to keep on the bright side and be grateful for the things I can do ...but hey, the sun can't shine all the time...sometimes you have to acknowledge your feelings and vent
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