This is my first time to post but have had RRMS (though not much "remitting" over past couple years). I desperately need to hear from others with MS who may have similar symptoms.
My fatigue symptoms have gotten so bad, I can't imagine it continuing to worsen.
Some days, I can hardly accomplish the simplest of tasks. I can not attend any family gatherings because the talking (or just listening) totally wipes me out. It actually "hurts" my brain to think. It gets worse as the day goes on and feels like my brain is swollen inside my skull. I avoid telephone calls because it tires me so. I feel very isolated because the fatigue is so bad. I avoid even phone calls because after a 10 minute conversation, it puts me in the bed for sometimes, hours.
I am still able to walk short distances and do not use any assistive devices yet, but am having some falls over the past month. I'm losing strength in my legs. I have vertigo and migraines, vision trouble, numbness and many other symptoms, but the cognitive decline is so scary. My memory, ability to focus, ability to have a simple conversation seems to be declining at a rapid pace!
I am having trouble describing my pain and cog-fog. I was diagnosed in 2001 and treatments have included interferon shots, tysabri and finally lemtrada. I use to have good days AND bad days. But the fatigue and cog decline have taken over. I stay confused, uexhausted, and isolated as a result. My faith in God keeps me going, but am doubting how long I will last.
My fatigue symptoms have gotten so bad, I can't imagine it continuing to worsen.
Some days, I can hardly accomplish the simplest of tasks. I can not attend any family gatherings because the talking (or just listening) totally wipes me out. It actually "hurts" my brain to think. It gets worse as the day goes on and feels like my brain is swollen inside my skull. I avoid telephone calls because it tires me so. I feel very isolated because the fatigue is so bad. I avoid even phone calls because after a 10 minute conversation, it puts me in the bed for sometimes, hours.
I am still able to walk short distances and do not use any assistive devices yet, but am having some falls over the past month. I'm losing strength in my legs. I have vertigo and migraines, vision trouble, numbness and many other symptoms, but the cognitive decline is so scary. My memory, ability to focus, ability to have a simple conversation seems to be declining at a rapid pace!
I am having trouble describing my pain and cog-fog. I was diagnosed in 2001 and treatments have included interferon shots, tysabri and finally lemtrada. I use to have good days AND bad days. But the fatigue and cog decline have taken over. I stay confused, uexhausted, and isolated as a result. My faith in God keeps me going, but am doubting how long I will last.
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