Marie,
I know it's a long time coming but keep your chin up!
I just started with a new neurologist in May and my life has been crazy since then. I'm back at work full time for the first time in a couple years, my cog issues are better and since it is a physical job I am building a lot of muscle that is helping with some of my physical disability issues.
It is amazing what a neuro that listens can do! I also take benzodiazepines for bed time been for years and this neuro didn't change that. Surprisingly enough he recommended only Vitamin B12 for fatigue. I thought he was nuts as I was looking for one of the strong ones mentioned here. He said that may be called for but try the B12 first. I did and WOW 1 1000mcg pill a morning and I have more energy and less cog fog until at least 2 or 3 every day. By going with a vitamin rather than a drug it avoided adding on side effects and also makes sleep at night easier in fact past 2 nights I haven't even take a benzodiazepine. He changed some other things and like I said WOW it made all the difference. Within six weeks of seeing him I was back at work I feel like a new man and 9 days out of 10 I can forget I have MS.
Of course everyone is different but IMHO having a neuro that both listens and knows what they are talking about is huge. 12 years with MS and the past 6 months have been almost as good as the first 2 years were. Like was said in the thread, take notes!!! I used a calendar and wrote each day exactly what was going on, adding to it through out the day and took that in with me for my first appointment. He took the time to sit and read it day by day asked questions about certain things and really tried to understand what was going on.
I know it's a long time coming but keep your chin up!
I just started with a new neurologist in May and my life has been crazy since then. I'm back at work full time for the first time in a couple years, my cog issues are better and since it is a physical job I am building a lot of muscle that is helping with some of my physical disability issues.
It is amazing what a neuro that listens can do! I also take benzodiazepines for bed time been for years and this neuro didn't change that. Surprisingly enough he recommended only Vitamin B12 for fatigue. I thought he was nuts as I was looking for one of the strong ones mentioned here. He said that may be called for but try the B12 first. I did and WOW 1 1000mcg pill a morning and I have more energy and less cog fog until at least 2 or 3 every day. By going with a vitamin rather than a drug it avoided adding on side effects and also makes sleep at night easier in fact past 2 nights I haven't even take a benzodiazepine. He changed some other things and like I said WOW it made all the difference. Within six weeks of seeing him I was back at work I feel like a new man and 9 days out of 10 I can forget I have MS.
Of course everyone is different but IMHO having a neuro that both listens and knows what they are talking about is huge. 12 years with MS and the past 6 months have been almost as good as the first 2 years were. Like was said in the thread, take notes!!! I used a calendar and wrote each day exactly what was going on, adding to it through out the day and took that in with me for my first appointment. He took the time to sit and read it day by day asked questions about certain things and really tried to understand what was going on.
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