If you read an earlier post of mine you will see back in Jan-March I was trying to figure out why I was so tired...by tired I mean exhausted and bed ridden. After 2 MRIs and multiple blood draws and 4 dr visits I finally had a diagnosis in March. I had a re-activation of Epstein Barr virus (I had a bad case of mono at 17). I asked my neurologist if Tecfidera could have caused it and if I should go off it. The response was "we cannot rule it out so I should go off it for a month". Well I went off it for 2 months because I didn't want to re-start until I was no longer feeling fatigued. Now it's 4 weeks after my re-start and I feel the fatigue symptoms back again. I wonder if my crappy immuno-modulated immune system can't seem to keep the Virus at bay. After reading the recent publication of Tecfidera causing a re-activation of the virus that causes shingles I am further convinced that Tecfidera has caused my Epstein Barr Virus re-activation.
For that reason I am seriously considering quitting Tecfidera after being on it for over 3 years. I plan to discuss it with my doctor next week. Before that I thought I would reach out to see if anyone else on Tecfidera has had a re-activation of Epstein Barr Virus.
For that reason I am seriously considering quitting Tecfidera after being on it for over 3 years. I plan to discuss it with my doctor next week. Before that I thought I would reach out to see if anyone else on Tecfidera has had a re-activation of Epstein Barr Virus.
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