I wanted to pass this on for whatever it's worth: I have just found out that one of my "symptoms" is actually more than likely a rare side effect of Aubagio. I have been taking Aubagio for almost a year and a half, with the only side effects being low WBCs and pretty significant hair loss (which stopped after a few months, but my hair won't grow back now).
Over the past few months, I've noticed a new kind of neuropathy in my hands and feet. Completely symmetrical. I told my doc, who of course said that doesn't sound like it's from your MS. So he did a bunch of blood work looking for other things that could be causing it. Nothing showed.
Then one day while the Aubagio rep was in his office, he decided to ask if peripheral neuropathy could be a side effect. The rep had my doc call the Aubagio Medical Director to discuss. Turns out, there have been 30 reported cases of this kind of neuropathy with Aubagio.
Anyone out there one of the 30??? I'd love to know if the annoying/painful sensations go away once you stop taking the drug. Looks like I will be switching to Copaxone soon - but first doc is sending me to MS Specialist who apparently sees 3 of the 30 patients in a town 1.5 hrs away - just to confirm. Ugh.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
Over the past few months, I've noticed a new kind of neuropathy in my hands and feet. Completely symmetrical. I told my doc, who of course said that doesn't sound like it's from your MS. So he did a bunch of blood work looking for other things that could be causing it. Nothing showed.
Then one day while the Aubagio rep was in his office, he decided to ask if peripheral neuropathy could be a side effect. The rep had my doc call the Aubagio Medical Director to discuss. Turns out, there have been 30 reported cases of this kind of neuropathy with Aubagio.
Anyone out there one of the 30??? I'd love to know if the annoying/painful sensations go away once you stop taking the drug. Looks like I will be switching to Copaxone soon - but first doc is sending me to MS Specialist who apparently sees 3 of the 30 patients in a town 1.5 hrs away - just to confirm. Ugh.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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