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    #16
    Originally posted by Carolinemf View Post
    Hi GooGoogirl,
    This would have to be one of the hardest things to deal with. So sorry.
    I hope you find comfort in sharing.
    There are many here who can empathise and offer practical advice if needed.
    Thank you Caroline
    And even though the moment passed me by I still can't turn away
    'Cause all the dreams you never thought you'd lose
    Got tossed along the way

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      #17
      It's the most embarrassing of all the indignities MS brings.

      Urinary incontinence - Depends are my friends. It's mainly because I forget to "go" on a regular basis. And then when the need strikes it is a race I don't often win.

      Any distractions along the way spell disaster. I have to concentrate. No more checking emails before I get out of bed - up and at it.

      Worked out my bowels generally demand attention about half an hour after eating. Like toilet-training a puppy.

      Usually this is doable if I'm within wheelie-walker distance of a lavatory.

      Let's say 50 metres. Has to be a straight path, no 90 degree angles and no hoicking the thing up a ramp, and definitely no stairs, otherwise trouble ensues.

      I think all the movement (standing, walking, reversing onto the lab - which I can't "sense" anymore) sends things through faster.

      Good luck. Incontinence pants are way too expensive.

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        #18
        Incontinence--what I've found out

        I'm the person who started this thread. I thought I'd share some little ideas which have helped me, although not totally solved the problem.

        I went to a Urogynecologist who was very understanding and enabled me to share my story using pictures, etc. She later performed a Urodynamic Test, which involves running cool water through your empty bladder and telling the technician when the bladder starts to feel full and when I couldn't hold it any longer. Determined irritable bladder. Tried 2 meds w/no help -- now on Myrbetric 50 mg with maybe 50% benefit. I still wonder if that's enough or if I should try another method? I guess I'll discuss when I see her again in July.

        Bowel incontinence -- she prescribed 2 gummy fibers 2x/day -- yes that's right over the counter gummy fibers of any brand. She said add an imodium and adjust until the problem goes away. Amazing it has helped 70% for me. I have charted my food intake and find that eggs and salad in particular make me have more loose/uncontrollable bowels. Also I find if I "go" to the toilet as soon as I feel like I need to, I'm good. If I'm in a store or somewhere where the bathroom is a distance a way I can have incontinence so I carry a clean pad and clean underwear at all times.

        She also sent me to a pelvic floor therapist to learn exercises to make my muscles stronger, leading to less "accidents". Really easy -- 20 reps of kegal like exercises except using rectum/anal muscles instead of vagina. She said slow easy movement only; 20 reps of putting 10" ball between my knees while my legs are bent and propped in bed or recliner, slowly squeezing knees to ball - 20 xs; and bridges laying on back with knees bent/propped lifting pelvis easily holding 5 seconds and releasing 20x. Yes they worked. I can tell because I stopped PT in Feb and haven't been doing them at home -- I need to get busy again.

        I hate having to think about it, but at least these simple things did help me. Hope some of you can get some relief too.
        Sue

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          #19
          Products

          Incase any of you are still suffering I have finally found a good product for incontinence. Its a new company called Hexa and Co, they deliver discreetly to your home and they are half of what I was paying for other pads and diapers. I will post their link here incase you are interested, but they were a lifesaver for me.

          **URL removed by Moderator in compliance with MSWorld Guidelines. This may be put in your Profile for all registered, logged-in members to see. Go to your Username on black bar running across top of page > My Settings > Edit Profile**

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