Hey all, thanks for reading, and nice to meet you all! I've come to these forums because my doctor believes I have MS, and I'm currently waiting until after Easter to see an MS neuro specialist, so I'm halfway to a diagnosis. In my heart of hearts I hope it's not MS, but reading about everyone's strength on here gives me hope that I can get through it too if it is!
I guess it all started for me when I was diagnosed with Interstitial Cystitis. It took months to diagnose that, lots of doctors didn't believe in me, and thought it was all in my head. It's been pretty down hill since then. I then developed cognitive difficulties - I had and still have balance issues (walking up stairs is terrifying to me!), and memory issues. I swear, I spend half of my time walking around the house trying to find things I've put down 5 minutes earlier!
Then came the bowel issues, the pain and bloating, which they thought was from my severe constipation. So IBS it was...
Then I got Uveitis, and lost some of my vision in my left eye. My eyes still play up, I get pain and spots. Sometimes it's harder to see.
then came summer, and the weird sensations of tingling all over my body as well as severe fatigue when I get overheated.
Now it seems like everything has gone down hill drastically since then. 5 hour naps a day along with regular sleep at night, fatigue even after taking a shower which is hilarious to think about, but also makes me want to cry.
Now on a daily basis I'm struggling with fatigue, struggling with leg pain, and pains in my hands, tingling in various parts of my body, and chest pain which scares me a lot. I always joke with my family that if I had a heart attack I wouldn't know! Pains just everywhere in my body. I also get what I call hot spots on my body where parts on my legs or arms will go really hot. Yesterday was quite scary. I've had numbness and pins and needles before, but yesterday all the sudden my whole back and half my bum went numb and tingly for a few hours. I cried. I didn't expect it, and I've been in my nice little denial bubble about having MS since my doctor told me she thought I had it 2 months ago. So now I'm starting to think she's right, and I'm terrified.
I've come on these forums because I want to learn about this condition, and also to be supported and give support. It's quite scary, as symptoms come and go, and they're so out of the blue and weird, it's hard to keep track and also not go insane. I've had to take a few months break from work to deal with this, so hopefully the neuro can give me answers and treatment soon!! As I write this, my forehead is tingling. Who bloody knows lol. I'd love to hear some feedback on my story, those who have experienced similar issues, and how they've dealt with them.
Anyway, it will be lovely to meet you all eventually, and share the support!
I guess it all started for me when I was diagnosed with Interstitial Cystitis. It took months to diagnose that, lots of doctors didn't believe in me, and thought it was all in my head. It's been pretty down hill since then. I then developed cognitive difficulties - I had and still have balance issues (walking up stairs is terrifying to me!), and memory issues. I swear, I spend half of my time walking around the house trying to find things I've put down 5 minutes earlier!
Then came the bowel issues, the pain and bloating, which they thought was from my severe constipation. So IBS it was...
Then I got Uveitis, and lost some of my vision in my left eye. My eyes still play up, I get pain and spots. Sometimes it's harder to see.
then came summer, and the weird sensations of tingling all over my body as well as severe fatigue when I get overheated.
Now it seems like everything has gone down hill drastically since then. 5 hour naps a day along with regular sleep at night, fatigue even after taking a shower which is hilarious to think about, but also makes me want to cry.
Now on a daily basis I'm struggling with fatigue, struggling with leg pain, and pains in my hands, tingling in various parts of my body, and chest pain which scares me a lot. I always joke with my family that if I had a heart attack I wouldn't know! Pains just everywhere in my body. I also get what I call hot spots on my body where parts on my legs or arms will go really hot. Yesterday was quite scary. I've had numbness and pins and needles before, but yesterday all the sudden my whole back and half my bum went numb and tingly for a few hours. I cried. I didn't expect it, and I've been in my nice little denial bubble about having MS since my doctor told me she thought I had it 2 months ago. So now I'm starting to think she's right, and I'm terrified.
I've come on these forums because I want to learn about this condition, and also to be supported and give support. It's quite scary, as symptoms come and go, and they're so out of the blue and weird, it's hard to keep track and also not go insane. I've had to take a few months break from work to deal with this, so hopefully the neuro can give me answers and treatment soon!! As I write this, my forehead is tingling. Who bloody knows lol. I'd love to hear some feedback on my story, those who have experienced similar issues, and how they've dealt with them.
Anyway, it will be lovely to meet you all eventually, and share the support!
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