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    I'm not sure how to start. ..

    I've been struggling along, just waiting for my symptoms to subside so I can go back to some sort of normal life.

    I was originally diagnosed 10/31/14 after 2 MRI s by a neurologist I was referred to by my family doctor. She sent me to see him after the tests she had ordered to try and figure out why I was having problems with my balance and numbness in my right foot showed nothing.

    The neurologist referred me to an MS specialist in San Antonio since he no longer treated MS patients. I've seen the specialist regularly since.

    I've been on Tysabri since 2/15 and my symptoms have progressively gotten worse.

    So, Hi.
    That's me.

    #2
    Hi Ccarpenter and welcome! I'm sorry that you have to be here. What Symptoms are you having?

    Comment


      #3
      Where to start. ..
      Vertigo, or as I refer to it, equilibrium.
      Numb feet and occasionally hands.
      Walking / standing.
      Stamina & fatigue.
      Brain fog.
      A stammer that gets worse when I'm hurried or stressed.
      And of course overall pain, mostly in my lower back.

      I'm guessing there are others I'm not remembering right now, but those are the majors. The equilibrium was the first and probably most frustrating one. I had to quit riding my motorcycle because of it and now I don't even drive much.

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        #4
        Relapse and major leg pain

        I was diagnosed with MS in 2006. I was hospitalized last week with severe leg pain. Went through 3 days of steroid infusions in an IV. Still have pain and I don't know how long it takes for the infusion to kick in. I've done the infusion before but that was for optic neuritis. Never leg pain!! I'm hurting really bad!! Any info on how long it takes would be great!!! Not sure how to post this in a new post..

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          #5
          Originally posted by dzimmerman View Post
          I was diagnosed with MS in 2006. I was hospitalized last week with severe leg pain. Went through 3 days of steroid infusions in an IV. Still have pain and I don't know how long it takes for the infusion to kick in. I've done the infusion before but that was for optic neuritis. Never leg pain!! I'm hurting really bad!! Any info on how long it takes would be great!!!
          Hi dzimmerman

          Welcome to MS World!

          Sorry to learn about your severe leg pain. I don't have experience with steroids, so unfortunately I can't offer help with that, but I'm sure other members can.

          Originally posted by dzimmerman View Post
          Not sure how to post this in a new post..
          To start your own thread:
          *click on the sub-forum that you want the thread to be in
          *then on the upper left, directly above the threads, click on Post New Thread (blue bar)
          *note that there will be a space to put in a brief title for your thread

          Hope this helps!

          Take Care
          PPMS for 26 years (dx 1998)
          ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

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            #6
            help

            Confused MS or not

            Mri several small focal areas of high signal in pericallosal and cerebral white matter bilaterally .imflamation eg infection ,demyelination.

            Lumbar puncture came back negative for protein and organisms . I have had sumptuous for 7 years flair ups of tremors in lower arms ,throbbing lower legs ,ice pick stabbing pain in head itching skin,exhausted ,swollen pale face with very dark eyes ,mood swings.after this flair up which has lasted ongoing 5 months with hospital stay for 7 days .bad lower legs like childblains very painful,tiredness ( exhausted) ,nausea with retching ,facial numbness ,arm numbness,tingling tongue,head pain ,hip pain. do I have ms or not ?

            **URL's edited by moderator in compliance with guideline 6**

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