These are still my thoughts (what I said originally in the last thread I started in sept 2015) but I wanted to give an update I guess. I struggle with going back to the dr. In a way I'd really like to have an official diagnosis and talk to them about PPMS. But, why?
Every day is somewhat functional, but not without struggles. Some times things are a lot worse. There's a fine line between hanging on and doing too much, and unfortunately I don't know the boundaries until I cross them or play it safe and stop early. I know I'll never be the same, but sometimes I forget that. Sometimes I'm too hard on myself and don't realize my expectations are not
realistic.
Any way - for those that have a rough time day in and day out but are still usually able to walk and are usually somewhat functional, can you share your diagnosis and a little about your MS? I still wonder if I might have PPMS but ... I don't know. Maybe I'm just understanding RRMS wrong? There is no "remitting" here but there are times when I am more functional.
Thanks for listening. I'd like to include a link to the last thread I posted but I'm on my phone and not sure how to do that. It's titled something like my thoughts so far - I'm sure you can find it by clicking on my name?
Every day is somewhat functional, but not without struggles. Some times things are a lot worse. There's a fine line between hanging on and doing too much, and unfortunately I don't know the boundaries until I cross them or play it safe and stop early. I know I'll never be the same, but sometimes I forget that. Sometimes I'm too hard on myself and don't realize my expectations are not
realistic.
Any way - for those that have a rough time day in and day out but are still usually able to walk and are usually somewhat functional, can you share your diagnosis and a little about your MS? I still wonder if I might have PPMS but ... I don't know. Maybe I'm just understanding RRMS wrong? There is no "remitting" here but there are times when I am more functional.
Thanks for listening. I'd like to include a link to the last thread I posted but I'm on my phone and not sure how to do that. It's titled something like my thoughts so far - I'm sure you can find it by clicking on my name?
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