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    #16
    Techniques and tips MS'rs use to conserve energy, stay organized, to keep motivated/engaged, etc.
    RRMS 2011, Copaxone 2011-2013, Tecfidera 2013-current

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      #17
      Doctor Chat

      I need to stress that taking a pad of paper with notepad prior to visit making notes as to any new symptoms...I have a habit of forgetting something every single visit and I need to stress them more, I feel like I don't do myself any justice by being wishy washy and passive!!! GRRRR! Why, because I don't want to complain? That's the time I'm surely supposed to complain! I forgot to tell my Neurologist about my new stomach problems....it's very concerning.

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        #18
        Where to find good exercise programs/videos that cover all ranges of disability.

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          #19
          What creative outlets do you use to help you stay positive.
          Lolli_pOP
          Creative Center Director
          Content Management Director
          Social Media Administrator

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            #20
            what sort of creative ways do you find to keep you happy
            hunterd/HuntOP/Dave
            volunteer
            MS World
            hunterd@msworld.org
            PPMS DX 2001

            "ADAPT AND OVERCOME" - MY COUSIN

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              #21
              Originally posted by Lilianap View Post
              I know how you feel. Still undiagnosed although my neurologist believes it is MS but my lesions are not specific enough. Still see him every three months to see progress. Very frustrating.
              The neurologist that my pcp referred me to was initially thinking stroke, however after time and more symptoms evolved I checked myself into an area hospital and got a diagnosis much faster. -Ryan

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                #22
                Originally posted by hopefullotus View Post
                Topics of the Month Suggestions:

                2) How to control heat intolerance.
                Ditto.

                Also curious as to.what temperature heat intolerance begins to affect others.
                Last edited by Kimba22; 05-31-2016, 04:29 PM.
                Kimba

                “When you change the way you look at things, the things you look at change.” ― Max Planck

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                  #23
                  I did not read through the other replies, but how abot something having to do with other issues affecting MS (like ON< or UTI`s ...)?
                  hunterd/HuntOP/Dave
                  volunteer
                  MS World
                  hunterd@msworld.org
                  PPMS DX 2001

                  "ADAPT AND OVERCOME" - MY COUSIN

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                    #24
                    Guilt

                    Guilt:
                    1 about being less disabled than others with the same problem
                    2 about sometimes using the problem as an excuse to avoid doing things that seem to hard
                    3 about letting people down when you just can't do any more
                    4 about worrying those that you care about
                    5 about resenting that loved ones 'don't understand'
                    6 about just wanting to quit (everything) sometimes
                    7 about being a burden
                    8 about being the one who could possibly pass on the genetic predisposition for this to kids and grandkids.

                    That's all I can think of at the moment , but I'm pretty sure there are others.

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                      #25
                      Sticky add!

                      "How do you treat or congratulate yourself when you have accomplished a goal or reached a milestone?"

                      Thanks All!
                      Lolli_pOP
                      Creative Center Director
                      Content Management Director
                      Social Media Administrator

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                        #26
                        Although I like the suggestion of "Guilt" mentioned earlier, I have another to add:

                        Given that you have MS and probably will always be coping with your new life, is there a physical location, a geographic place, that you believe might make a difference in living your life? and why? For instance, near your favorite MD or near to/far from family members or where climate is hot/cold, humid/dry, where you can get meds more easily, etc

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                          #27
                          I'd like to discuss what others do to alleviate the stress over the holidays. How do you shop, cook, plan, keep sane, etc. Even though it's usually a happy time for all, stress is still there.
                          1st sx '89 Dx '99 w/RRMS - SP since 2010
                          Administrator Message Boards/Moderator

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                            #28
                            Originally posted by Kimba22 View Post
                            Ditto.

                            Also curious as to.what temperature heat intolerance begins to affect others.
                            over 80 degrees

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                              #29
                              I just realized there is an area for suggestions haha I just sent an email to Seasha

                              My suggestion for a member topic of the month is Denial.

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                                #30
                                now that iit is snowing outside, what aactivities do you occupy your time with?
                                hunterd/HuntOP/Dave
                                volunteer
                                MS World
                                hunterd@msworld.org
                                PPMS DX 2001

                                "ADAPT AND OVERCOME" - MY COUSIN

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