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What´s your relapse rate on Gilenya?

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    What´s your relapse rate on Gilenya?

    Met with neuro this week and he thinks that Gilenya is not preventing enough relapses for me. I´ve had 1.36 per year if I divide it out over the months. The trial rate was 0.18. So instead of slightly fewer than 1 every 5 years, I´m having more than one per year. Neuro is suggesting trying another med. Gilenya has kept new brain lesions at bay but not spinal ones. Feedback?

    #2
    Based on various clinical trials over the years, 1.36 relapses per year is about the rate for people in the placebo groups who weren't taking a DMD at all. So if you're having the same relapse rate as a person not taking a DMD at all, it makes sense that your neuro would suggest another med.

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      #3
      My relapse rate on Gilenya is zero. I have been symptom free since 2011.
      LCPL USMC
      DIOG 12-26-2006
      BETA 3-15-2007

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