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1 Year Update - MRI and ReBif

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    1 Year Update - MRI and ReBif

    Hello All,

    I'm 41 years old and found out I had MS in January 2015. I have been on Rebif since April 2015. My presenting symptom was a headache in my left eye that turned out to be optic neuritis. The doctor thinks I've probably had MS for about 2 years. I was only on the 44 mcg for about a month when they switched me to the 22 mcg because the Rebif lowered my white blood cell count. I have been on the 22 mcg ever since and my wbc has recovered.

    I had my 1 year MRI last week and just got the results. My neurologist and I decided this would be the MRI that would determine whether I would stay on Rebif or go to another DMD. The important part of the results that I wanted to relay to you is this: "All lesions are stable except for the previously described right subcortical deep white matter lesion. This has decreased in size previously measured 12 x 5 x 10 mm, presently 9 x 5 x 8 mm. No new lesions. No intra cranial hemorrhage."

    Based on these findings my neurologist has decided to keep me on Rebif. I am overjoyed with these results and am hoping this DMD will workout for a few years, at least. I have lots of bruises from the shots but I sleep through any side effects and do not pre-medicate in any way. Everyone's experience with DMDs is different, but I can remember reading everything in sight looking for information on drugs and not seeing a lot of personal experiences with Rebif. I hope this info will help anyone out there looking for insight from someone who has used it for a year with decent results so far!

    Best to you all...and please let me know if I can answer any questions. I'll add that since that initial optic neuritis incident and a twitch in my face that bugged me through the month of July I haven't had any relapses or symptoms thus far.

    Lj
    "It matters not how strait the gate,
    How charged with punishments the scroll,
    I am the master of my fate,
    I am the captain of my soul." ˜William Ernest Henley

    #2
    Thank you for sharing! I'm newly diagnosed and researching all my DMD options before my specialist appointment so, things like these are what I look for!

    Glad to hear you are doing good one year out on the med!!

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      #3
      Oh good! I'm so glad that helped and I'm sorry about the poopy diagnosis. Hearing those words changes everything.

      I swear you feel like an MS drug expert after all the research early on! Please let me know if you have any specific questions, if/when you get to that point. For me, knowing the drug is working makes it easier to do the shots.
      "It matters not how strait the gate,
      How charged with punishments the scroll,
      I am the master of my fate,
      I am the captain of my soul." ˜William Ernest Henley

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