Hi everyone,
Just posting a quick introduction. I was just officially diagnosed with RRMS last week, though it didn't come as a surprise after months of testing, I can't say I'm entirely pleased about it. But, I have what I have and I'll deal with it.
A short history: I'm a 43-year-old woman with no medical history of anything really and no real clues that anything has been wrong with me, but apparently MS has been working in my system for a while and my body's just been handling it on its own. (Go figure!)
A few months ago I went numb from my chest down to my toes, with some balance issues and strange neuroconductive fatigue-like issues with distance walking, which have mostly resolved after I finished an IV drip of solumedrol about two days ago.
My MRIs show a few small lesions that I could probably live with forever and never know are there, but a "significant involvement" of spinal lesions, all of which are apparently old. Again, go figure -- apparently my body's just been sort of handling things on its own. Anyway my MS specialist told me looking at my MRIs she'd never expect to see them attached to the person functioning pretty close to normal standing in front of her face. So I'll take that as a good thing.
Anyway, I just finished my steroids and am deciding what DMD to take. She is recommending Tysabri. I am JCV-, thankfully.
I've decided to follow the Jelinek OMS diet plan, and have been aggressively supplementing vitamin D, B12 (both were deficient), acetyl-l-carnitine, r-lipoic acid, COQ10, NAC, omega-3s, probiotic, and some other things I'm forgetting.
My general plan is to kick this flare and never be back here again. I believe in the power of positive thought, paired with positive action.
Glad to meet you.
kw
Just posting a quick introduction. I was just officially diagnosed with RRMS last week, though it didn't come as a surprise after months of testing, I can't say I'm entirely pleased about it. But, I have what I have and I'll deal with it.
A short history: I'm a 43-year-old woman with no medical history of anything really and no real clues that anything has been wrong with me, but apparently MS has been working in my system for a while and my body's just been handling it on its own. (Go figure!)
A few months ago I went numb from my chest down to my toes, with some balance issues and strange neuroconductive fatigue-like issues with distance walking, which have mostly resolved after I finished an IV drip of solumedrol about two days ago.
My MRIs show a few small lesions that I could probably live with forever and never know are there, but a "significant involvement" of spinal lesions, all of which are apparently old. Again, go figure -- apparently my body's just been sort of handling things on its own. Anyway my MS specialist told me looking at my MRIs she'd never expect to see them attached to the person functioning pretty close to normal standing in front of her face. So I'll take that as a good thing.
Anyway, I just finished my steroids and am deciding what DMD to take. She is recommending Tysabri. I am JCV-, thankfully.
I've decided to follow the Jelinek OMS diet plan, and have been aggressively supplementing vitamin D, B12 (both were deficient), acetyl-l-carnitine, r-lipoic acid, COQ10, NAC, omega-3s, probiotic, and some other things I'm forgetting.
My general plan is to kick this flare and never be back here again. I believe in the power of positive thought, paired with positive action.
Glad to meet you.
kw
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