Experienced Tysabri guy
I'm on my 87th Tysabri infusion. I'm JC negative and get tested about every six months. It's free, paid for by Tysabri. I'm unable to walk and user a scooter. I wasn't as dependent on the scooter when I started, but slowly eased into using one. I'm told that I might have been debilitated soon if I wasn't on Tysabri, but who knows.
I will probably still use it even if I become JC positive. The reason is because was told that the only reason they check for the JC virus is because that was the only thing that the original users that died had in common. They didn't know if it was just having the JC virus and being on Tysabri that caused the deaths, so they were playing it safe. I guess I'll know if that's true if I ever become positive.
Talk later.
I'm on my 87th Tysabri infusion. I'm JC negative and get tested about every six months. It's free, paid for by Tysabri. I'm unable to walk and user a scooter. I wasn't as dependent on the scooter when I started, but slowly eased into using one. I'm told that I might have been debilitated soon if I wasn't on Tysabri, but who knows.
I will probably still use it even if I become JC positive. The reason is because was told that the only reason they check for the JC virus is because that was the only thing that the original users that died had in common. They didn't know if it was just having the JC virus and being on Tysabri that caused the deaths, so they were playing it safe. I guess I'll know if that's true if I ever become positive.
Talk later.
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