Things really stareted off in May 15 with odd skin sensations on my left side that eventually has turned into a "muted" skin senation from hip to ankle. On a trip in June, my feet were on fire. I had trouble walking around San Antonio sight-seeing. I had a couple falls...one in May, one in June, one in September, one last weekend at my mom's. My balance is shot...I've only started feeling dizzy since November.
At first, I thought it was from my bad back. Had laminectomy in 05. Have 2 bulging disks now. After seeing my general neurologist for the back, and pain clinic for spinal injections, I asked for a brain MRI on the off chance something more was going on.
MRI showed white matter disease consistent with MS. Evoked potentials was difficult to interpret...eyes and ears fine, but with deficits in arms and sorta in legs. I say sorta because we know I have nerve damage from 10 years ago. Also he couldn't get a good reading on right leg because when they did the left, they set off my back pain. Next was LP. Let me just say, the spinal tap headache is no joke. I ended up in the ER on Christmas to get a blood patch. Anyways, LP came back with 4 o-bands positive for MS, but the neuro thinks it was a false positive due to blood in the fluid? So now I'm being referred to KU Med's MS clinic. Which is fine by me, just wish it was sooner than March. That's my story for now!
At first, I thought it was from my bad back. Had laminectomy in 05. Have 2 bulging disks now. After seeing my general neurologist for the back, and pain clinic for spinal injections, I asked for a brain MRI on the off chance something more was going on.
MRI showed white matter disease consistent with MS. Evoked potentials was difficult to interpret...eyes and ears fine, but with deficits in arms and sorta in legs. I say sorta because we know I have nerve damage from 10 years ago. Also he couldn't get a good reading on right leg because when they did the left, they set off my back pain. Next was LP. Let me just say, the spinal tap headache is no joke. I ended up in the ER on Christmas to get a blood patch. Anyways, LP came back with 4 o-bands positive for MS, but the neuro thinks it was a false positive due to blood in the fluid? So now I'm being referred to KU Med's MS clinic. Which is fine by me, just wish it was sooner than March. That's my story for now!
. I am glad you at least finally got a definite answer, even though it is not something you want to hear! Like was already said, it is better not to constantly second-guess everything.
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