Kind of a half year in review
I checked this board 6 months ago to see what posts had appeared. Had the joy of chatting with some of you before I disappeared for 6 months.
That was approximately 2 weeks before I was hit with a major heart attack with which I fought for my life for 3 weeks I am told. They told me I was in a coma for all but a few hours of those 3 weeks. I also coded 5 times and had a double bypass and a defibrillator inserted when it was discovered that my heart wasn't going to settle down. I was away from home for 2 months during which time they made me stay bed ridden for all but 2 weeks during which I was in rehab and they kept me wheelchair bound. I went through PT, OT, Speech (a couple different kinds it seemed). Through all but rehab, one of my caregivers stayed by my bedside. She didn't want me to wake up alone and not know where I was or what had happened to me. Although the few hours I was not in a coma showed them my brain was still active and had not been damaged by the by then 4 times dying, it also showed them that my mind was reacting both to the event by running from it and dreaming up stuff and to the medicine they had me on by what my mind was dreaming up.
For a few days after waking up I was afraid to go back to sleep because I was convinced the kidnappers were waiting for just that to take me back. It took me a month to fully believe I hadn't been kidnapped, beaten and starved.
When they let me go home, I had OT, PT, and a nurse several times a week for weeks until I could force myself to meet their standards no matter how much pain I was in. I passed their tests in time to enter allergy season which sidelined me. Just in time for NaNoWriMo.
National Novel Writers Month during the month of November. This is a month of writing 50,000 words in 30 days. For 7 years I tried and this, the 7th - I made it for the first time.
And I am once again having difficulties. My caregivers and I are attempting to get things started once more but with the holidays upon us it is difficult to find the time. Meanwhile, my BP has dropped, I am tired but can't sleep. Some of the meds they put me on makes me sick to my stomach. My GP has done what he could. Finally I got in to see my Heart Dr and he has taken me off my Blood pressure medicine only to put me on 3 others. He says within 6 months there is another medicine he wants me off of totally if there is any way possible.
No one (Drs)wants to do anything because of the heart attack. ALL meds have to be given with care - even any meds I am given by my neuro. Everyone tells me to clear it with my heart doctor first.
Meanwhile, I have to tell my GP that he said to go ahead and treat the anemia and my nuero is to increase my meds for spasms and sleeping. This of course will be addressed the next time I go to see these drs which will be a month from now.
The great news of the year is that my MS is in remission. I don't know what I would do if I had that to fight in addition to these others at the same time. Right now these are hard enough. So I am truly Blessed
That was approximately 2 weeks before I was hit with a major heart attack with which I fought for my life for 3 weeks I am told. They told me I was in a coma for all but a few hours of those 3 weeks. I also coded 5 times and had a double bypass and a defibrillator inserted when it was discovered that my heart wasn't going to settle down. I was away from home for 2 months during which time they made me stay bed ridden for all but 2 weeks during which I was in rehab and they kept me wheelchair bound. I went through PT, OT, Speech (a couple different kinds it seemed). Through all but rehab, one of my caregivers stayed by my bedside. She didn't want me to wake up alone and not know where I was or what had happened to me. Although the few hours I was not in a coma showed them my brain was still active and had not been damaged by the by then 4 times dying, it also showed them that my mind was reacting both to the event by running from it and dreaming up stuff and to the medicine they had me on by what my mind was dreaming up.
For a few days after waking up I was afraid to go back to sleep because I was convinced the kidnappers were waiting for just that to take me back. It took me a month to fully believe I hadn't been kidnapped, beaten and starved.
When they let me go home, I had OT, PT, and a nurse several times a week for weeks until I could force myself to meet their standards no matter how much pain I was in. I passed their tests in time to enter allergy season which sidelined me. Just in time for NaNoWriMo.
National Novel Writers Month during the month of November. This is a month of writing 50,000 words in 30 days. For 7 years I tried and this, the 7th - I made it for the first time.
And I am once again having difficulties. My caregivers and I are attempting to get things started once more but with the holidays upon us it is difficult to find the time. Meanwhile, my BP has dropped, I am tired but can't sleep. Some of the meds they put me on makes me sick to my stomach. My GP has done what he could. Finally I got in to see my Heart Dr and he has taken me off my Blood pressure medicine only to put me on 3 others. He says within 6 months there is another medicine he wants me off of totally if there is any way possible.
No one (Drs)wants to do anything because of the heart attack. ALL meds have to be given with care - even any meds I am given by my neuro. Everyone tells me to clear it with my heart doctor first.
Meanwhile, I have to tell my GP that he said to go ahead and treat the anemia and my nuero is to increase my meds for spasms and sleeping. This of course will be addressed the next time I go to see these drs which will be a month from now.
The great news of the year is that my MS is in remission. I don't know what I would do if I had that to fight in addition to these others at the same time. Right now these are hard enough. So I am truly Blessed
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