After years of tests and Drs. I finally was DX'd with Benign MS in 09. Then in Dec 09 I was told I had RRMS while in the hosp. But my neuro does not like the DMD's so he refused to start them. By spring 2011 my symptoms were worse so he suggested I start Gilenya, Sept 2011 was started on med. I was doing well on the med still having symptoms and problems but doing better without any new relapses (only pseudos).
Then out of the blue he ordered a spinal tap and said beforehand that he was thinking of stopping DMD as he had read about side effects. Tap came back neg so he said "that meant I did not have nor could I have ever had MS!!!!" He barely spoke to me or looked me in the face!!! I felt like he was calling me a liar!!! He stopped the DMD cold turkey!
2 weeks later I developed a severe case of shingles. ( my daughter and husband thinks it was due to the sever stress of his treatment of me) I tried to call him several time's about the shingles for help and treatment. But he never returned my calls. He said he would see me in 3 mo to see how I was doing off of the DMD ( he said I would feel better).
My daughter went with me, he looked at my shingles (from across the room)and said that it was the worse case he had ever seen. He said they had nothing to do with stopping the DMD or MS. He argued with us about the results of the tap. He said maybe I should go see the original Dr. that gave me my DX's!!??!! My daughter and I were speechless with shock! Then we both told him at the same time that he was the one who DX'd me!!!
Boy did he start to back paddle! He says are you sure? Yes we were both there( My daughter is a is an excellent nurse). He then stated that "uhh well" I do have have Benign MS but should not take DMD's. Then said I could get a second opinion. Problem is, he was the only Dr in Ft Worth
area who treated MS. (My Dr at that time said this Neuro was an MS specialist he knew and was really good.) Now this Dr tells me he does not know anything about MS!!!!!!!!
Now I'm out in the cold, depressed still suffering with shingles pain and itching after almost 7mo.
and ready to give up completely... I really cant find a reason to do this anymore! I'm tired, broken and fed up. All I want to do is sleep! I have to force myself to look after my sick 77 yr old husband and dogs. I've stopped doing crafts, cleaning or going anywhere.
Anyone contemplating suicide, even if only for an instant, or anytime in the future, should call the National Suicide Prevention Lifeline 1-800-273-8255 Professionals that can help are available 24/7. PLEASE call! It's free and 100% confidential
Then out of the blue he ordered a spinal tap and said beforehand that he was thinking of stopping DMD as he had read about side effects. Tap came back neg so he said "that meant I did not have nor could I have ever had MS!!!!" He barely spoke to me or looked me in the face!!! I felt like he was calling me a liar!!! He stopped the DMD cold turkey!
2 weeks later I developed a severe case of shingles. ( my daughter and husband thinks it was due to the sever stress of his treatment of me) I tried to call him several time's about the shingles for help and treatment. But he never returned my calls. He said he would see me in 3 mo to see how I was doing off of the DMD ( he said I would feel better).
My daughter went with me, he looked at my shingles (from across the room)and said that it was the worse case he had ever seen. He said they had nothing to do with stopping the DMD or MS. He argued with us about the results of the tap. He said maybe I should go see the original Dr. that gave me my DX's!!??!! My daughter and I were speechless with shock! Then we both told him at the same time that he was the one who DX'd me!!!
Boy did he start to back paddle! He says are you sure? Yes we were both there( My daughter is a is an excellent nurse). He then stated that "uhh well" I do have have Benign MS but should not take DMD's. Then said I could get a second opinion. Problem is, he was the only Dr in Ft Worth
area who treated MS. (My Dr at that time said this Neuro was an MS specialist he knew and was really good.) Now this Dr tells me he does not know anything about MS!!!!!!!!
Now I'm out in the cold, depressed still suffering with shingles pain and itching after almost 7mo.
and ready to give up completely... I really cant find a reason to do this anymore! I'm tired, broken and fed up. All I want to do is sleep! I have to force myself to look after my sick 77 yr old husband and dogs. I've stopped doing crafts, cleaning or going anywhere.
Anyone contemplating suicide, even if only for an instant, or anytime in the future, should call the National Suicide Prevention Lifeline 1-800-273-8255 Professionals that can help are available 24/7. PLEASE call! It's free and 100% confidential
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