hello to all, I was just wondering how many of us with PPMS are on this board.
I would also like to know what stage of progression we are all in, I'll start right now:
I have had PPMS, with no remissions, since 1986. I am currently unable to use my arms, hands, legs or feet. My head works just fine.
I did have Optic Neurtious early on but it didn't affect my vision much after it went away. So far my speech is good, but at times, lately, I have bouts where my voice is too weak and people say "speak louder" , this is the first symptom I've had in years that his new.
I am fortunate because I live in a wonderful nursing home and have a wonderful insurance carrier that has given me an electric wheelchair, etc.
I realize I am one of the few that has progressed this far and can still communicate on this board, but I thought I'd reach out and see if I'm right, hoping I'm wrong.
I would also like to know what stage of progression we are all in, I'll start right now:
I have had PPMS, with no remissions, since 1986. I am currently unable to use my arms, hands, legs or feet. My head works just fine.
I did have Optic Neurtious early on but it didn't affect my vision much after it went away. So far my speech is good, but at times, lately, I have bouts where my voice is too weak and people say "speak louder" , this is the first symptom I've had in years that his new.
I am fortunate because I live in a wonderful nursing home and have a wonderful insurance carrier that has given me an electric wheelchair, etc.
I realize I am one of the few that has progressed this far and can still communicate on this board, but I thought I'd reach out and see if I'm right, hoping I'm wrong.
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