Hello fellow Copaxone users
I was dx in 2011 and started Betaseron right away. I was on it for 4 years and struggled whether or not I should go off of it because I was stable and no relapse but I felt like I had the flu every.single.day.
My Neuro and I decided I should go off of it and try Copaxone since it's not an interferon. I've been on it now since April and have had no problems except for a slight stinging/itching that went away after about 10 mins. Then BAM. About a month ago, I got the dreaded side effect. The ear/neck/face flushing that felt like my whole head was on fire, and the shortness of breath. My husband was ready to call 911 but I knew about this and told him to wait even though I was scared out of my mind.
Since that time, I have had a reaction similar to that almost every time I have taken it, but last nights was the worst yet. I had all the flushing, shortness of breath but now the shortness of breath was way way worse and I felt nauseous and had tingling in my hands and face and felt like I was going to pass out. After it subsided, I had severe chills which I've never had before.
I refuse to accept that this is the way I have to live and I refuse to stop and let MS ravage my body. So I'm stuck. I'm stuck in the middle of this personal prison.
Has any one of you had these horrible side effects? Do get get any better or go away?
I was dx in 2011 and started Betaseron right away. I was on it for 4 years and struggled whether or not I should go off of it because I was stable and no relapse but I felt like I had the flu every.single.day.
My Neuro and I decided I should go off of it and try Copaxone since it's not an interferon. I've been on it now since April and have had no problems except for a slight stinging/itching that went away after about 10 mins. Then BAM. About a month ago, I got the dreaded side effect. The ear/neck/face flushing that felt like my whole head was on fire, and the shortness of breath. My husband was ready to call 911 but I knew about this and told him to wait even though I was scared out of my mind.
Since that time, I have had a reaction similar to that almost every time I have taken it, but last nights was the worst yet. I had all the flushing, shortness of breath but now the shortness of breath was way way worse and I felt nauseous and had tingling in my hands and face and felt like I was going to pass out. After it subsided, I had severe chills which I've never had before.
I refuse to accept that this is the way I have to live and I refuse to stop and let MS ravage my body. So I'm stuck. I'm stuck in the middle of this personal prison.
Has any one of you had these horrible side effects? Do get get any better or go away?
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