Hi all...it's sure been a long time since I've visited MS World, which is a sign that all has been well with me. This September marked 14 years since my diagnosis and I've had my share of optic neuritis, vertigo, neuropathy in my hands, numb tongue and fatigue. Probably other stuff that I'm forgetting (oh yeah, forgetting words in mid sentence...super embarrassing).
Anyway, onto my current worry/issue. It has lasted a good week or so. My legs are just driving my nuts! (actually still aches while at rest...can't get comfortable) Constant achiness from my hips all the way to my feet. It is worse when I sit for a bit and try to get up and walk. I definitely have a funky walk for a few minutes and I seem to loosen up. But the pain just isn't easing up. I've tried aleve during the day, but isn't really helping. I also take Neurontin and I've started taking a higher dose to see if it helps. Yeah, it helps but leave my brain like mush. Not conducive to working! I do still work 4 days a week in a busy hospital lab. HR at my work is aware of the MS, but I have never talked about it with my supervisors etc. I'm just scared of losing my job. Right now with the pain I'm dealing with, I just don't know how long I can hide it.
My DH just tells me I need to stretch and walk and exercise. No kidding...(sarcasm)...but somehow I just can't pull that off right now.
Does this sound familiar, friends? I need a little guidance. I was just at the neuro 3 weeks ago and I was doing great! Only thing I couldn't do was jump on one foot. Then he gave me a pamphlet for ampyra...said I may need to keep this in mind for the future. What prompted this!? Hopefully, he wasn't seeing this episode I'm having now, on the horizon. Should I go back and see the dr again? I'm miserable and scared.
Thanks for listening.
Missyb
Anyway, onto my current worry/issue. It has lasted a good week or so. My legs are just driving my nuts! (actually still aches while at rest...can't get comfortable) Constant achiness from my hips all the way to my feet. It is worse when I sit for a bit and try to get up and walk. I definitely have a funky walk for a few minutes and I seem to loosen up. But the pain just isn't easing up. I've tried aleve during the day, but isn't really helping. I also take Neurontin and I've started taking a higher dose to see if it helps. Yeah, it helps but leave my brain like mush. Not conducive to working! I do still work 4 days a week in a busy hospital lab. HR at my work is aware of the MS, but I have never talked about it with my supervisors etc. I'm just scared of losing my job. Right now with the pain I'm dealing with, I just don't know how long I can hide it.
My DH just tells me I need to stretch and walk and exercise. No kidding...(sarcasm)...but somehow I just can't pull that off right now.
Does this sound familiar, friends? I need a little guidance. I was just at the neuro 3 weeks ago and I was doing great! Only thing I couldn't do was jump on one foot. Then he gave me a pamphlet for ampyra...said I may need to keep this in mind for the future. What prompted this!? Hopefully, he wasn't seeing this episode I'm having now, on the horizon. Should I go back and see the dr again? I'm miserable and scared.
Thanks for listening.
Missyb
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