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To start Plegridy or not?

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    To start Plegridy or not?

    Hello.

    I failed Tecfidera after approx. 6 months. My neuro has suggested Plegridy as my next DMT. My insurance uses CVS specialty pharmacy and I see that may be a big issue in a few months as Plegridy seems to be no longer covered in 2016.

    Aubagio and Gilenya were both not options for me due to side effects / other medications I currently take. Tysabri I advocated for, but they want to hold that off for later in the game.

    Copaxone is an option, but due to my recent issues, I know it takes longer to "kick in" and that scares me a bit. The post-injection bumps that may not go away do a bit as well, but I can get past that if I have to. I have this new spasticity in the last month that went from nonexistent to affecting daily living and a Baclofen dose that went from 10 mg daily to 50 mg daily in one month.

    I guess I'm asking if anyone with more experience has any friendly advice. I'm new to this and these are big decisions. I've discussed it with my wife, my MS specialist, his nurse and NP. I know most of the options on the table. Just seems like Plegridy would be a lot more solid option without the CVS dilemma in 2016.

    Thanks,
    Sazed

    #2
    Started today

    Just gave myself the first injection of Plegridy. Fingers crossed it was the right decision. I qualified for the free Rx, so that was a bonus.

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      #3
      I switched to Plegridy back in January. So far I have been very pleased with this medication. I do get quite a red area a few days after injecting and it does last a few weeks. But it is not painful at all. Just looks bad and I can deal with that. The injection is not painful at all and does not leave the hard lumps like Copaxone did when I was taking it.

      I do get a terrible headache for about two days after injecting which we have been trying different things to get it under control. I now take prescription Aleve and that seems to do the trick. I also had these same headaches when I was on Rebif so I kind of expected it.

      All in all all for me Plegridy seems to be working well and I seem to be tolerating it a lot better than the previous two meds I was on.
      Wendy

      Comment


        #4
        So far so good

        Thanks Wendy. Glad it is working well for you.

        I am 72 hours into my 63 mcg dose and have only been achy / sore joints and muscles. Hoping the full dose is this way.

        Sazed

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