Announcement

Collapse
No announcement yet.

Low Dose Naltrexone

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Low Dose Naltrexone

    Hi.
    I have been researching many sites and listening to many first hand stories about the experiences and benefits of LDN. I live near Pittsburgh, PA and would like to find a doctor that will prescribe it. My current neurologist thinks it's out of the question. I'm done with DMDs. have been on 3 different ones for 11 years. still my abilities have gotten worse. I would appreciate any advice you may have. I would like to see for myself if it will help me. Thank you all for listening.
    Kathy Sue

    I not only believe in Miracles....I depend on them.

    #2
    I have been on LDN for 2 years and have had no progression in my MS. the only way I got my Neuro to prescribe it was to refuse all other treatment. I'm a nurse so i did a lot of research before concluding that LDN was the only DMD that made any sense to me. I started LDN at 5mg but that ran my blood pressure up and i had to cut back to 2.5mg. I take it at night before going to bed and there are no side effects. hope this helps.
    dx:RRMS 3/10/09
    DMM: Low dose Naltrexone

    “Dwell on the beauty of life. Watch the stars, and see yourself running with them.”
    ― Marcus Aurelius, Meditations

    Comment


      #3
      I live in suburban Philadelphia. I couldn't find a doctor to prescribe LDN. Then, I found a 'naturopath' who was also an MD. He prescribed the LDN at 3mgs, once daily. Then he upped the dose to 4.5 mgs, once daily. I have been on it for about 5 years.
      I then found an MS 'specialist' neurologist who understood the use of LDN. That is how the situation remains, now. I also take Tecfidera and have been taking Tec for about 2 years. Hope that you find a doctor to write the script for you .

      Comment


        #4
        Originally posted by KATHY SUE View Post
        Hi.
        I have been researching many sites and listening to many first hand stories about the experiences and benefits of LDN. I live near Pittsburgh, PA and would like to find a doctor that will prescribe it. My current neurologist thinks it's out of the question. I'm done with DMDs. have been on 3 different ones for 11 years. still my abilities have gotten worse. I would appreciate any advice you may have. I would like to see for myself if it will help me. Thank you all for listening.
        Hi Kathy. My name is Rand.

        I posted most of this under “new guy”. I was officially diagnosed with PPMS in 2008. I would like to hear from anyone about their experiences with Low Dose Naltrexone.

        A month ago I was so weak and fatigued I was sure I would be in a wheelchair in a matter of weeks. While surfing the net, without hope, I found Naltrexone, researched it, and have been taking it since Aug 31.

        After three weeks, and a beer, I walked a block, bought an ice cream and sat for 15 min, then walked four blocks home, with a one min rest after three blocks. And the next day I wasn’t sore or stiff from the exercise.

        Since then, I have the occasional mild forehead fever, still get sore muscles, but they’re stronger and don't ache like they use to. I have been having trouble sleeping, but that may be because of my environment (two teenage sons). I can now work physically for an hour or more a day, now and again, which I haven’t done for a couple of months.

        The regime I’m following now includes;

        Modafinel – Two in the morning (down from three, started six months ago)
        MM and ibuprofen for pain
        Naltrexone – 2 ml morning and night

        I also use an electrical muscle stimulator (EMS), about the size of a transistor radio, most days, to exercise different muscles.

        I began physiotherapy three years ago, once every two weeks, last year, once a week, and now twice a week for massage and adjustments. I stopped taking Fampyra because I don't need it anymore. I reduce modafinel intake from three to two a day.

        Anecdotal evidence suggests progression could stop for some people, and if that happens and this is as good as it gets, I’d be fine with that. But if not, I’m better now than I was and I’ll enjoy what I can, when I can.

        In the meantime, please respond with your thoughts about LDN or is you have any questions.

        Comment


          #5
          Have been trying it for a month

          My doctor has had me on LDN now for about a month. He was hoping it would help with chronic arthritis in my hands. It has helped a little. It does keep you waking at around 4am in the morning, but you get used to that. I am on 2mg taken at night time. No other bad side effects!

          Comment


            #6
            Hi Michael,
            I see that you found this thread ! I responded about 2 years ago about how my doctor wanted me to use this drug. I have found that before using the LDN, my sleep was constantly disturbed (I had not had a dream for a long time) ! I found that, after about 2 or 3 months of taking LDN, I began to sleep much better and dream like I had been before I was diagnosed with this evil plague. (MS) ! I wish you luck with LDN and the MS.

            Comment

            Working...
            X