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    it is official

    I got all test results back and they were all normal... I earned an official diagnoses today...although what I was told is they do not like to label types as some insurance companies will refuse treatment to some... so I was told they are treating me as if I had relapsing remitting... not sure how I should have taken that... anyways they will be sending out a Nurse to teach me and my Hubby how to inject me. It is a preloaded thing... but I am not so sure about being able to push that button. Still not sure what to feel at this point... but I am in such it up buttercup mode right now...

    #2
    Hi bamabel - So you are finally out of the tunnel of wondering!! I remember when I got the final dx, and as weird as it sounds, I was somewhat relieved.

    What med are they putting you on? The nurse will be of great help to you as you get started. Mine let me practice on an orange! I was still apprehensive, so my dh did the shots for me for a few weeks. After that, I was fine.

    I hope it goes smoothly for you and come back to ask questions once you get started.
    Good luck
    1st sx '89 Dx '99 w/RRMS - SP since 2010
    Administrator Message Boards/Moderator

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      #3
      Hi Bamabel, welcome to the club none of us wanted to be part of. I am truly sorry that this has happened to you. I am only about 3 months ahead of you in diagnosis and I can tell you that whatever you are feeling today, tomorrow or months from now - be it sorrow, anger, self-pity, hope - all of that is totally normal. Let yourself feel your feelings and grieve. I am on Copaxone 3x a week, and I can tell you that injecting is no big deal. You totally get used to it. ((((HUGS)))), I know how much this stinks.
      Diagnosed RRMS 4/7/15, symptoms for 8 months prior. Copaxone 4/27/15

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        #4
        betaseron

        I believe ...if I remember correctly I will be on betaseron... and will self inject a preloaded thing every other day... I followed her until she mentioned self injecting... then I was stuck and heard nothing else... she did tell me "oh it is so cute..." I asked is it pink? Pink is cute...LOL

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          #5
          So sorry bamabel that you are coping with this new diagnosis. I'm on betaseron (extavia) also. You do get used to the injections. I found it easier to do manual injection rather than the self injector. Might be helpful to learn both methods. I believe insurance companies may not cover for these meds unless you have a RRMS diagnosis. I think I have read in other posts that some doctors keep that diagnosis even if you may fall into a different category so you can get these meds. If there's any chance they could help, it's worth taking them.
          Take care. My thoughts and prayers go out to you.

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