My journey started about 6 years ago. Lots of MRI's, balance issues, cognitive issues, blood tests, spinal taps, neuro psych testing etc....
Went to neuro after latest spinal tap, blood work, last MRI was innumerable brain lesions.
Spinal tap only positive for one band.
What really has me upset is she said it could be Primary Progressive instead of Relapsing/Remitting.
I do not have the typical exacerbations but my cognitive issues are worsening and the lesions increase. Still waiting for some lab work but she said regardless, she will DX me and said I should consider if I would want to go on meds or not.
Just diagnosed yesterday. Feeling very sad and depressed.
Although I thought this day may come, the reality has set in and I fear the future.
Just wondering how others felt when diagnosed.
Went to neuro after latest spinal tap, blood work, last MRI was innumerable brain lesions.
Spinal tap only positive for one band.
What really has me upset is she said it could be Primary Progressive instead of Relapsing/Remitting.
I do not have the typical exacerbations but my cognitive issues are worsening and the lesions increase. Still waiting for some lab work but she said regardless, she will DX me and said I should consider if I would want to go on meds or not.
Just diagnosed yesterday. Feeling very sad and depressed.
Although I thought this day may come, the reality has set in and I fear the future.
Just wondering how others felt when diagnosed.
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