Hello everyone! I am 20 years old and was diagnosed with CRION (chronic recurrent inflammatory optic neuropathy). I am currently on long-term steroid use(prednisone), and started taking immunosuppressants(Cellcept) 4 months ago, in order to reduce the use of steroids. Nevertheless, I still experience episodes of ON.
I am making this thread because I have the feeling that some things trigger ON. From my experience, I have noticed that:
stress
flights
lack of sleep, and
spring (?!)
trigger ON! Has anyone else had a similar experience? I have become really frustrated with this whole situation, as I have been taking so many pills this past year, and yet the symptoms remain. Hence, I want to know if there is something that may trigger ON, so that I can avoid it. Have you noticed any other environmental factors that may trigger ON?
I am making this thread because I have the feeling that some things trigger ON. From my experience, I have noticed that:
stress
flights
lack of sleep, and
spring (?!)
trigger ON! Has anyone else had a similar experience? I have become really frustrated with this whole situation, as I have been taking so many pills this past year, and yet the symptoms remain. Hence, I want to know if there is something that may trigger ON, so that I can avoid it. Have you noticed any other environmental factors that may trigger ON?
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