Hello my wife has MS and been on everything there is, had to stop most because of recations, Tysabri because she tested Positive for JVC, and danger of PML, now on TECFIDERA, with not much results at all. Doc (in Cullman, Ala) wants her to start on Lemtrada the end of this month. I talked to one of the infusion nurses and was told it was Chemo X3 said they wouldn't give it to their dog because of side effects and greater chance of PML even then Ty. said there was nothing to do if bad reactions and they did not know the results past 5 yrs.
I talked to the Lemtrada Rep. last week and ask if it was Chemo, she wouldn't tell me one way or the other just beat around the bush as we Southern's say, but never gave me a straight answer!! Don't really know what to do, MS Doc told my Daughter when she ask about her Mom that there were NO side effects I guess he hasn't read the Info that they send out with this stuff. Sure makes me wonder and don't know what to do, this is our last chance, and my wife is either in bed or wheel chair most all of the time, drained from the once Vibrant person she was to now not being able to do anything for her self and taken so many falls it hurts me to even think about them, we spent Easter Sunrise in the ER from a fall, face first from commode onto ceramic tile floor.
Take Care
Woody
I talked to the Lemtrada Rep. last week and ask if it was Chemo, she wouldn't tell me one way or the other just beat around the bush as we Southern's say, but never gave me a straight answer!! Don't really know what to do, MS Doc told my Daughter when she ask about her Mom that there were NO side effects I guess he hasn't read the Info that they send out with this stuff. Sure makes me wonder and don't know what to do, this is our last chance, and my wife is either in bed or wheel chair most all of the time, drained from the once Vibrant person she was to now not being able to do anything for her self and taken so many falls it hurts me to even think about them, we spent Easter Sunrise in the ER from a fall, face first from commode onto ceramic tile floor.
Take Care
Woody
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