Bad Brain Day

[Perennialz]

Yikes!
Over the last few months I've had my annoying flare-ups but man.... the last few days has taken a toll on me. I usually put up with constant tingling on the left side of my head, back and pinprick sensations on both feet. Sometimes I'll get the feeling of a blunt object jammed on my right heel. That's just a few of my "regulars" to vent about.

The last 48 hours, I've had weakness on the left leg and arm, not to mention mentally I feel numb. It almost feels like I've either been drinking, or just got off steroid treatments.

Also my hearing isn't working right either. I can hear well, but my problem is when people talk they sound like they're constantly yelling. Not only is that annoying to me, but it's also triggering more flare-ups (especially the anxiety/restless feelings). I wear earplugs at work all the time because the noise reduction is essential for me. But I usually don't wear them when I'm in the break room eating, and that's when my BP starts to spike.

I'm ready to wear earplugs in the break room just to keep my nerves calm. I have no appetite if I'm upset, not to mention I feel sick to my stomach when I feel anxious.

[22cyclist]

I had something like this with a medullary pontine lesion. I felt like I was walking through mud on the floor when I could still walk, My middle ear was numb, I had pins and needles in both legs and feet. I was diagnosed pretty early because it does give you somewhat of a disorientation in the room. An MRI of the C-spine will give them a good idea about what, if anything is going on down there. These two diseases are treated completely differently. So you want to get the correct diagnosis.

End of my story is I do have spinal and brain stem MS lesions. You may want to seek a second opinion, if so, bring all of your records and request these particularly so you can pick them up at the providers office.

My hope for you is that you will get some answers soon. The correct diagnosis is a must when deciding which drugs you want to use. I guess I am never comfortable with a person being diagnosed by lack of MRI support. Waiting a little while will not kill you, but I know you want to be a little more aggressive.

So look for an MS Specialist, keep us informed, we care about you!

Take care
Lisa

[poohb3ar]

bless your heart!

and feet, head etc!

i often wear earplugs to keep from going crazy from the noise and to cut down on incessant migraines!

can't imagine what the foot pain feels like, numbness i'm used to, but that sounds awful!

listen to cyclist, she definitely knows what she's talking about.

praying you get help soon.

take care & God bless ya!

[Perennialz]

Thank you Cyclist and Pooh
The good news, (kinda lol) is my bouts with anxiety/eye/ears have disappeared... for now. The worst I experienced anxiety bouts was Jan.+Feb. I also had vertigo once in Jan. with numbness in my right foot, with a heavy left leg, and some creepy electric charge running down my spinal cord.
That's when my specialist Rx'ed me my 2nd Rx.
Going back in time in Dec., I was admitted in the hospital. My ophthalmologist found 2 lesions in my brain with ON at it's worst. I was on methyl-prednisolone IV treatments for a week.
When I had my 2nd MRI the neurology team at the hospital found a spinal cord lesion in my neck in December during my ON incident.
The end of Apr-present, I had recently experienced some new symptoms including the Lhermitte's syndrome that my MS specialist confirmed 2 weeks ago. Right around the time I was curious with the strange sensations I was getting when I flexed my chin to chest, I was getting feedback from my right toe to my glute. (almost felt like putting your tongue to a 9 -volt battery feeling).
He's ordered another MRI next month to see if any new lesions have cropped up since my last MRI, followed by a follow up appt. soon after the scan.
I'm currently on copaxone since Feb. this year, so I need to ride out my "regulars" that come to visit unexpectedly in hopes that it's only a pseudo-flare-up, and not the real deal.
Trouble is, I have no idea how on God's green earth to tell them apart, other than new symptoms occur.
I've been keeping up-to-date with my patient's journal to show my specialist followed with any kind of concerns I'll write down to ask. I've been keeping contact with him either calling, or e-mailing the MS clinic regarding my last new incident involving Lhermitte's.

[Perennialz]

and feet, head etc!

i often wear earplugs to keep from going crazy from the noise and to cut down on incessant migraines!

can't imagine what the foot pain feels like, numbness i'm used to, but that sounds awful!

listen to cyclist, she definitely knows what she's talking about.

praying you get help soon.

take care & God bless ya!

You guys are the best!
I can vent or inquire of any goofy symptom feeling I experience, past/present here on MSW, and always get great advice from Cyclist, and all of you This past few days have only been some small "regulars" like my left upper spine tingling a bit with right arm spasticity. Everything else seems to be "quiet in the realm" atm. A good weekend indeed for me.
I've got another MRI coming up next month to see if any new lesions have formed. Wish me luck.--Chris

[Perennialz]

I had something like this with a medullary pontine lesion. I felt like I was walking through mud on the floor when I could still walk, My middle ear was numb, I had pins and needles in both legs and feet. I was diagnosed pretty early because it does give you somewhat of a disorientation in the room. An MRI of the C-spine will give them a good idea about what, if anything is going on down there. These two diseases are treated completely differently. So you want to get the correct diagnosis.

End of my story is I do have spinal and brain stem MS lesions. You may want to seek a second opinion, if so, bring all of your records and request these particularly so you can pick them up at the providers office.

My hope for you is that you will get some answers soon. The correct diagnosis is a must when deciding which drugs you want to use. I guess I am never comfortable with a person being diagnosed by lack of MRI support. Waiting a little while will not kill you, but I know you want to be a little more aggressive.

So look for an MS Specialist, keep us informed, we care about you!

Take care
Lisa

Hiya Lisa.
I do have a MS specialist whom I've been either visiting, or contacting him via MS clinic since the ON incident. Sometimes I call him my neurologist, but he's in truth my MS specialist. My recent call to the clinic was my first experience with my cervical spine lesion chiming in Lhermiite's syndrome, and so far since a couple weeks ago, symptoms visit/leave in waves,(I nicknamed them my "regulars").
My recent visits were in Dec.and March, and I have another visit coming up next month following my MRI without/with contrast.
I've began copaxone 40mg in Feb. and so far I'm riding out my "regulars" which come and go.
Chris

[Perennialz]

Hiya Lisa.
I do have a MS specialist whom I've been either visiting, or contacting him via MS clinic since the ON incident. Sometimes I call him my neurologist, but he's in truth my MS specialist. My recent call to the clinic was my first experience with my cervical spine lesion chiming in Lhermiite's syndrome, and so far since a couple weeks ago, symptoms visit/leave in waves,(I nicknamed them my "regulars").
My recent visits were in Dec.and March, and I have another visit coming up next month following my MRI without/with contrast.
I've began copaxone 40mg in Feb. and so far I'm riding out my "regulars" which come and go.
Chris

I forgot to mention I'm not worried about my MS specialist, I'm comfortable with the help I'm getting.