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How do you know when you are having another flare

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    How do you know when you are having another flare

    I was diagnosed in early Jan when I went numb/tingly from my ribs down and my hands. After a round of IV steroids it got better, but never left my hands. I occasionally feel my legs tingle if I'm tired. So, I have had the tingly sensations for 3 months and I'm starting to wonder if it is here to stay. This last month I have started roger numbness in my face. How do you know if this is another flare vs just more of the same in new locations. Do most of you have some type of tingling all the time?

    #2
    Originally posted by 2ndgeneration View Post
    Do most of you have some type of tingling all the time?
    I don't know about most, but my paresthesia has never gone away for a minute since the first onset. It has spread from my feet to 90% of my skin, though...
    1st sx 11/26/09; Copaxone from 12/1/11 to 7/13/18
    NOT ALL SX ARE MS!

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      #3
      Hi 2ndgeneration,

      Sorry to hear about your tingly, numb hands. I have it in a few different places, and it's with me all the time. Sometimes, that's just the way it is. But, now I'm used to it and it's just part of my new "normal."

      An exacerbation of MS (also known as a relapse, attack or flare-up) causes new symptoms or the worsening of old symptoms ... To be a true exacerbation, the attack must last at least 24 hours and be separated from the previous attack by at least 30 days. Most exacerbations last from a few days to several weeks or even months. http://www.nationalmssociety.org/Tre...aging-Relapses. Since the numbness in your face is new, it would be considered a new flare. But, not all flares need to be treated with IV steroids. You can also refer back the link I shared. Regardless, you should still call your neurologist so it's documented.

      The tingles in your legs when you are tired wouldn't be considered a new flare. Heat can also cause symptoms to return or get worse. If symptoms go away after you've rested (or your body has cooled down), it's known as a pseudo flare.

      Good luck ,
      Kimba

      “When you change the way you look at things, the things you look at change.” ― Max Planck

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        #4
        I have all of these most all of the time. Generally my MS specialist will only treats MS weakness now, not sensory problems.

        Best of luck and let us know how it goes, OK?

        Take care
        Lisa
        Disabled RN with MS for 14 years
        SPMS EDSS 7.5 Wheelchair (but a racing one)
        Tysabri

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