I went for a refill yesterday. About a month ago, I started having pretty significant spasticity in what was always my "good" leg, so I went in and they upped the dosage of baclofen
I really didn't notice much effect from the increase in dose (I'm up in the mid 200's now, so I had a 5% increase.)
Yesterday at my refill the physiatrist asked about my tone, and I told her I'm still having one leg that just wants to be spastic, and she can see that when I try to manipulate that leg. My thinking has been that the good leg turned bad leg, was just having this increase in spasticity due to my MS progression, and I was being cautious and getting the dose raised in increments so the other leg would not weaken when spasticity was toned down even more. But that dosage hasn't been enough to take care of the advancing spasticity in the other leg.
My physiatrist's take was completely different (and hadn't even entered my mind), she wonders if the catheter is in place. I asked how a catheter out of place could be keeping the one leg almost spasticity free, yet not getting med to the other leg. She didn't know, but I've had weird stuff happen before with my pump...so I think they might expect a "Ripley's believe it or not" situation with me.
Long story, short...I'm going to have a dye study. And now I'm wondering because yesterday's increase, after the refill (5% up again) hasn't done anything for the ultra spastic leg.
Have you ever heard, or can imagine a scenario where the catheter would be positioned so the baclofen can be treating one leg, but not the other? That's why my theory seems more likely to me, but I've had a dye study before and it's such an easy test...I don't mind making sure everything is functioning properly.
I really didn't notice much effect from the increase in dose (I'm up in the mid 200's now, so I had a 5% increase.)
Yesterday at my refill the physiatrist asked about my tone, and I told her I'm still having one leg that just wants to be spastic, and she can see that when I try to manipulate that leg. My thinking has been that the good leg turned bad leg, was just having this increase in spasticity due to my MS progression, and I was being cautious and getting the dose raised in increments so the other leg would not weaken when spasticity was toned down even more. But that dosage hasn't been enough to take care of the advancing spasticity in the other leg.
My physiatrist's take was completely different (and hadn't even entered my mind), she wonders if the catheter is in place. I asked how a catheter out of place could be keeping the one leg almost spasticity free, yet not getting med to the other leg. She didn't know, but I've had weird stuff happen before with my pump...so I think they might expect a "Ripley's believe it or not" situation with me.
Long story, short...I'm going to have a dye study. And now I'm wondering because yesterday's increase, after the refill (5% up again) hasn't done anything for the ultra spastic leg.
Have you ever heard, or can imagine a scenario where the catheter would be positioned so the baclofen can be treating one leg, but not the other? That's why my theory seems more likely to me, but I've had a dye study before and it's such an easy test...I don't mind making sure everything is functioning properly.
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