Announcement

Collapse
No announcement yet.

Starting Tomorrow ~ Aubagio 14 MG.

Collapse
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
    #1

    Starting Tomorrow ~ Aubagio 14 MG.

    Hi!

    I have fully recovered from the stomach-flu bug I had, all clear and good to go now ... confirmed (starting the Aubagio had to be postponed); I take my first dose of 14 MG. Aubagio tomorrow morning. So ... the prayers begin.

    It looks like a hospital in here; I'm getting some lovely cabinets to close the doors on all this!! My home is my Sanctuary & Castle and it shall be reflected as such ... I don't need or desire this hospital-like environment, it's bad for my Spirit and it's bad for me; time to brighten this place up!! Time to re-organize, enclose and re-decorate!! Calling in the troops! All these prescription pills, all these supplements, all this medical equipment, these lotions and drops ... I have alarms set around the clock. Just added another. *sigh*

    Almost all buckled in, here we go ... tomorrow, IT'S ON!!

    ~ Cindy Lou Who


    DX'd on Wed., 02/04/2015, With Rare/Atypical SPMS
    MS Specialist/Neurologist, Verbatim: "Complicated & Intriguing"
    Tags: None
    #2
    Good Luck!

    I hope that Aubagio works as well for you as it has for me. I have taken it for 2 years now and have no new lesions or flares. I had the added benefit (for me, at least) of an unintentional weight loss of 35 pounds. My doctor says it is a side effect of the Aubagio.

    Comment

      #3
      Best wishes!
      I'm in my third month with Aubagio, had a wee bit of unhappy tummy for a very short time.
      Brighten up & redecorate sounds like an amazing thing to do.
      Tina
      "Hope for the best and plan for the worst. That way, all your surprises will be pleasant."
      Verin Mathwin, The Wheel of Time by Robert Jordan

      Comment

        #4
        Loopy & Tina,

        Thank you!! Today is day three on the Aubagio. So far, so good ... no side effects.

        On another note, I can't stay awake ... the chronic fatigue has been going on for years but has been "almost constant" for nearly a month now. I sleep around the clock and feel like I could just sleep forever. My average "awake time" is 4-7 hours within the 24-hours of each day, this is insane. The pain and discomfort are requiring a lot of pain management and I stay still and sleep through it. My MS is persistently telling me to "be still" ... when I finally wake up and start moving around, even just a little, it all comes back.

        I have Nuvigil to take for the chronic fatigue and it works very well for that, but it makes me feel stressed, nervous and my tremors get a lot worse. Worst of all, I struggle with high blood pressure and the Nuvigil makes it soar ... so I stopped taking it last December (even after cutting it in half). I have already tried Ritalin, Adderall, Provigil ... they all do the same thing; Nuvigil works the best for the nervousness, but still. Everything I try is like a "catch 22" ... it comes with a price.

        ~ Cindy Lou Who


        DX'd on Wed., 02/04/2015, With Rare/Atypical SPMS
        MS Specialist/Neurologist, Verbatim: "Complicated & Intriguing"

        Comment

          #5
          It stinks that you're having fatigue that bad.
          hugz
          "Hope for the best and plan for the worst. That way, all your surprises will be pleasant."
          Verin Mathwin, The Wheel of Time by Robert Jordan

          Comment

            #6
            Hope this is going well for you.
            Good Luck!

            Comment

              #7
              Started Aubagio

              Hi Cindy

              I just started the pills yesterday with no problems. I've been taking Ty for a few years, but they wanted me off Ty because I am a high JC Virus Titer number(3.5).

              I also have taken Nuvigil every day for a long time, and it really helps with the exhaustion. I can feel the difference if I forget to take it. I have no problems taking it, but I don't have any pain issues. I sleep longer also.

              Comment

                #8
                aubagio

                Originally posted by loopey View Post
                I hope that Aubagio works as well for you as it has for me. I have taken it for 2 years now and have no new lesions or flares. I had the added benefit (for me, at least) of an unintentional weight loss of 35 pounds. My doctor says it is a side effect of the Aubagio.
                .

                my son lost 25 lbs. before aubagio was started and I pray he doesn't lose any more weight..he also cannot eat, no appetitite

                Comment

                Previous template Next
                Working...
                X