Well just like the title says I've been taking Gilenya one week to the day and my Neuro has taken me off of it already. I have been having side effects but nothing to really be concerned about until this morning.
This morning about 2 hours after I took my meds I started to feel like I was having a nervous breakdown. I had the shakes, I couldn't concentrate on anything and I felt like I was about to come out of my skin. It was a horrible feeling. I called my Neurologist right away and he told me to stop taking it now, right now! I am supposed to call him back Monday.
I'm not sure if he will allow me to take a pill every other day or not. By his reaction and tone of voice I got the impression that I am done with Gilenya. But we will see. I hate this, this was my last chance at a DMD. I know there are other things out there but I am definitely not into those.
Even now I still feel lightheaded and dizzy. I about to call it a day at work. Fortunately I can work from home so as I start feeling better this evening I do some work.
So I will see what happens on Monday.
This morning about 2 hours after I took my meds I started to feel like I was having a nervous breakdown. I had the shakes, I couldn't concentrate on anything and I felt like I was about to come out of my skin. It was a horrible feeling. I called my Neurologist right away and he told me to stop taking it now, right now! I am supposed to call him back Monday.
I'm not sure if he will allow me to take a pill every other day or not. By his reaction and tone of voice I got the impression that I am done with Gilenya. But we will see. I hate this, this was my last chance at a DMD. I know there are other things out there but I am definitely not into those.
Even now I still feel lightheaded and dizzy. I about to call it a day at work. Fortunately I can work from home so as I start feeling better this evening I do some work.
So I will see what happens on Monday.
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