Stay awake too much....

[daraslyte]

Question, i know that fatigue can be a big issue , but does anyone ever experience not being able to sleep?

I have been for the last few months been off and more on then off, not sleeping at night. It is like my body does not want to sleep. There are times i will do housework in the middle of the night. I have had many nights with no sleep , from the time i get up in the morning to the following morning.

Well with the exception the past 2 nights i have been up all night.Now the next day i will get like a few hours maybe 2 or 3 at the most but not what i should be getting for not sleeping through the night at all. There are times i do not even get that much sleep,as i said i have been up for 2 days. Now im starting to feel it, but when i stay awake it is like i am wide awake sometimes with energy sometimes not, but the point is i can not sleep well anymore , and that makes some symptoms like cog fog worse.

I do not know what to do.I thought maybe it was coffee drinking but its not ,i dont have any rhyme or reason i just can not sleep. When im flaring up i will sleep then. It is weird , please someone help im confused and at a loss as to why i dont sleep well anymore.

It is very annoying to have temporary symptoms worsen because i cant sleep. I have tried to take a warm shower to settle down before bed , because heat makes me fatigued with heat intolerance and that does not work i will take a shower , lay down for about 1 hour or so and then get back up. I know it sounds crazy to over heat myself just to sleep but im at a loss. Any one ever experience times of NIGHT OWL SYNDROME, by the way i made that up because thats what i feel like.

Thank you

[KitOP]

I have the same issue. Some nights I can sleep or should I say some days I can sleep.

Then I get into a cycle of getting 2-3 hours and that is it. I have not found the magic trick that breaks this cycle. It's been going on since I've been diagnosed back in 2000.

I used to go to work on 2 hrs of sleep and be on the phones all day. Not good.

I guess I've just gotten used to it and accepted the fact it is what it is. I just push myself through the next day, do what I can do and don't worry about the rest.

I'm anxious to see what others have to offer to help with this. But what you have tried, I have too with no success. And I really don't want to take a pill to go to sleep, and I don't drink tea.

[RColeman]

I've been having the same issue as of late

I have always been a night owl..even before my diagnosis. Now...not so much. I'm usually in bed by 1 a.m.

But I think mine is due to the med I'm taking (Ampyra). However, I have a pretty flexible schedule so I'm able to sleep in or take a nap if I need to. I notice too if I adjust the time I'm able to get to sleep and stay asleep through the night.

Insomnia does come in handy though with college online course work, since I am able to get stuff done when I don't have the myriad distractions during the day.

[daraslyte]

I dont take anything to sleep. i do have amytriptyline for my ibs, but that use help me sleep but not anymore. I do not know what else to try. It is very frustrating, because i know eventually if i do not sleep i will pay for it.

I will start stuttering easier, feel like a mental handicap again and so on. The funny thing is i was at one time fatigued alot , and my nuero wanted to give me modafinil, but i would have to say i would not need it now. No i do not take that med modafinil to keep me awake because i did not want to add more meds to my list. One thing that i will have alot of no matter if i sleep or not is low energy, its like i have to push myself and try talking myself into doing stuff.


So that does not go away it just flucuates in intensity. Im real confused. I understand where your coming from kitop, have you talked with your nuero about this issue? I need to i just did not want to look like a hypochondriac, but maybe it might be my new thing now. Hopefully you guys will be able to find better sleep quality ,this disease is crazy i guess.

[MS TOO]

Count me as another member of the late night club! Many nights my brain won't turn off long enough to fall asleep. It seems to go in stretches where it gets better and I can sleep then long stretches where I sleep only a few hours a night. The next day I am able to make it through work by drinking lots of coffee.

The University of California, Davis recently completed a study that concluded that undiagnosed sleep disorders may be to blame for MS patients having fatigue. 70% of the MS patients in the study screened positive for one or more sleep disorders.

http://www.busbyway.com/2014/09/12/u...ple-sclerosis/

[Portia]

I would recommend seeing a sleep specialist. My neurologist is also a sleep specialist, and I have learned that there are many, many physical reasons that your normal sleep pattern can be disrupted. I know you don't want to take more meds, but there are new medications that aren't 'sleeping pills'. It sounds like your circadian rhythm being interfered with. Sleep is so important for the body to be able to heal and restore itself. Lack of sleep can cause many problems from increased weight gain to depression. Please consider seeing a sleep specialist.

[Mamabug]

I do take meds, only when I need to. A 5 mg dose of Trazedone usually does it for me. Sometimes, I take a second pill.

I read that it is an anti-depressant, and can also be used to treat anxiety, but that is at the 150 mg dose, not 5 or 10 mg.

I read, at another site, that trazodone is rarely used to treat depression alone any more. But that it is widely prescribed, off-label, at lower doses for treating insomnia, for several likely reasons. It is inexpensive, it is often considered to be safer than other sleep medications, and a side effect is drowsiness.

Another strategy that often works for me, so I don't need to take anything, is clearing my mind of whatever I'm thinking about. By singing a quiet song in my head, slowly and repeatedly. Sort of can act like a lullaby and put me to sleep.