We applied for Gilenya approximately 45 days ago and was denied by BC/BS of LA. My Neuro's staff put together an appeal package and submitted it two weeks ago. When I saw my Neuro last Monday I talked to the nurse that was handling the appeal and she told me she had spoke to BC/BS and they reviewing my file.
I called today to let my Neuro know I was having extreme difficulty walking due to legs weakness and spasticity. I was talking to the nurse and before she transferred me to my Neuro she told me the appeal had been denied. She had not even had time to tell my Neuro.
Well when I was talking with my Neuro and telling him my problems he said we just need to wait to see if Gilenya gets approved. That's when I told him it had been denied. I told him he needs to call BC/BS himself if we are going to have shot at getting this pushed through. He assured me he would call them immediately and let me know as soon as he heard something.
The bottom line here is Gilenya is my last shot at a DMD. I have tried everything else and nothing worked. I'm JC+ so Tysabri is out. And the worst part is I am progressing at a steady and rapid rate. What's a person supposed to do?
I called today to let my Neuro know I was having extreme difficulty walking due to legs weakness and spasticity. I was talking to the nurse and before she transferred me to my Neuro she told me the appeal had been denied. She had not even had time to tell my Neuro.
Well when I was talking with my Neuro and telling him my problems he said we just need to wait to see if Gilenya gets approved. That's when I told him it had been denied. I told him he needs to call BC/BS himself if we are going to have shot at getting this pushed through. He assured me he would call them immediately and let me know as soon as he heard something.
The bottom line here is Gilenya is my last shot at a DMD. I have tried everything else and nothing worked. I'm JC+ so Tysabri is out. And the worst part is I am progressing at a steady and rapid rate. What's a person supposed to do?
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