I had already asked this question in the general thread but then found out there is a specific thread for PPMS, so asking it here again.
I've noticed that I haven't really had any relapses these past years but that I've been getting progressively worse though. It's a lot harder for me to do stairs for example, it's like I'm trying to lift up 200kg attached to my legs. Each haha.
I have been having issues with my arms for as long as I can remember as well but lately it's been getting a lot more worse to the point I can't even lift the lid of a pot properly. All my psychical problems just seem to be getting progressively worse and it's definitely more noticeable when I'm tired.
My MRI's for some reason also keep coming clean, even though I have all these psychical problems. In my first year of diagnosis I had over 16 lesions, they probably stopped after 15 and gave up counting haha
Now my doctors think it's all the Tysabri's doing that my MRI is completely clean, however it doesn't explain my symptoms. If I were to have RRMS and these symptoms it should show on my brain, no?
Could anyone here that has PPMS please share their experience? And does anyone think that I might have progressed into it? Would it be wise to tell my neurologist and ask or maybe not because they might pull me off Tysabri?
Got my diagnosis when I was 18 as RRMS but I had symptoms since I was 13. I'm 23 now.
Opinions would be much appreciated!
I've noticed that I haven't really had any relapses these past years but that I've been getting progressively worse though. It's a lot harder for me to do stairs for example, it's like I'm trying to lift up 200kg attached to my legs. Each haha.
I have been having issues with my arms for as long as I can remember as well but lately it's been getting a lot more worse to the point I can't even lift the lid of a pot properly. All my psychical problems just seem to be getting progressively worse and it's definitely more noticeable when I'm tired.
My MRI's for some reason also keep coming clean, even though I have all these psychical problems. In my first year of diagnosis I had over 16 lesions, they probably stopped after 15 and gave up counting haha
Now my doctors think it's all the Tysabri's doing that my MRI is completely clean, however it doesn't explain my symptoms. If I were to have RRMS and these symptoms it should show on my brain, no?
Could anyone here that has PPMS please share their experience? And does anyone think that I might have progressed into it? Would it be wise to tell my neurologist and ask or maybe not because they might pull me off Tysabri?
Got my diagnosis when I was 18 as RRMS but I had symptoms since I was 13. I'm 23 now.
Opinions would be much appreciated!
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