I think I posted this earlier today. But maybe I didn't.
I was dx'd with Primary Progressive MS in 2009. I saw several neurologists, one of whom is the director of the MS center at Univ. of Penn Hospital. His opinion confirmed my diagnosis. I was told that there was no FDA approved medication to treat PPMS.
I have started to consult with a new neurologist, who is an MS specialist. He has prescribed Tecfidera and I have been taking it for about 2 weeks. I haven't noticed any improvements but I have found that I am getting more 'disabled', in the last few weeks. My balance is worsening. My manual dexterity is getting worse. I am more fatigued and easily distracted.
I live in my home with my wife and child. My wife works during the day and my child goes to school. I am worried that very soon I will not be able to be alone. Where do I go frm here? Do I try to find someone to 'baby sit' me. I don't know where to turn. Any suggestions?
I was dx'd with Primary Progressive MS in 2009. I saw several neurologists, one of whom is the director of the MS center at Univ. of Penn Hospital. His opinion confirmed my diagnosis. I was told that there was no FDA approved medication to treat PPMS.
I have started to consult with a new neurologist, who is an MS specialist. He has prescribed Tecfidera and I have been taking it for about 2 weeks. I haven't noticed any improvements but I have found that I am getting more 'disabled', in the last few weeks. My balance is worsening. My manual dexterity is getting worse. I am more fatigued and easily distracted.
I live in my home with my wife and child. My wife works during the day and my child goes to school. I am worried that very soon I will not be able to be alone. Where do I go frm here? Do I try to find someone to 'baby sit' me. I don't know where to turn. Any suggestions?
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