Hi Angelea:
What little you said in your post doesn't fit the description of primary progressive. And Lemtrada isn't a medication for primary progressive.
I'm assuming that you were diagnosed with RRMS because of you have clear relapses and remissions. SPMS can also still have relapses, even if there isn't much recovery.
A characteristic of primary progressive MS is that there are no identifiable relapses. So if you have a history of relapses, with or without recovery, you can't, by definition, have PPMS. You might possibly have primary relapsing MS, but it can't be primary progressive. I'm a bit puzzled at how your doctor could possibly have considered you to have primary progressive if you've had relapses.
Is your neurologist an MS specialist? I can't imagine how a doctor who emphasizes MS care wouldn't know that.
As long as you're having relapses, even if primary relapsing and even if the most recent was a year ago, Lemtrada might work because it works on inflammation and relapses instead of nerve degeneration, which is the main issue in primary progressive and secondary progressive MS.
It's very late in the game for you, having had SPMS for 10+ years. But since your last relapse was "only" a year ago, it's the best chance you have for trying to slow or prevent more progression.
What little you said in your post doesn't fit the description of primary progressive. And Lemtrada isn't a medication for primary progressive.
I'm assuming that you were diagnosed with RRMS because of you have clear relapses and remissions. SPMS can also still have relapses, even if there isn't much recovery.
A characteristic of primary progressive MS is that there are no identifiable relapses. So if you have a history of relapses, with or without recovery, you can't, by definition, have PPMS. You might possibly have primary relapsing MS, but it can't be primary progressive. I'm a bit puzzled at how your doctor could possibly have considered you to have primary progressive if you've had relapses.
Is your neurologist an MS specialist? I can't imagine how a doctor who emphasizes MS care wouldn't know that.As long as you're having relapses, even if primary relapsing and even if the most recent was a year ago, Lemtrada might work because it works on inflammation and relapses instead of nerve degeneration, which is the main issue in primary progressive and secondary progressive MS.
It's very late in the game for you, having had SPMS for 10+ years. But since your last relapse was "only" a year ago, it's the best chance you have for trying to slow or prevent more progression.
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