Hello all,
This is my first time posting here. I am just looking for support, thoughts, or advice anyone may have as I am still going through test to determine what is the cause of my symptoms.
A little background info: I'm a 24 yr old female who is overall healthy except for a history of epilepsy (diagnosed 2005) which is well controlled on medication. Also there is history of MS & Lupus in my family.
My symptoms started almost 2 years ago, first with tingling in my face (left cheek, nose & upper lip). I called my neurologist after this went on for 3 days straight, he didn't seem concerned about it so I didn't worry either. This random tingling has occurring on and off since. Around 8 months ago I begin having tingling, numbness, loss of sensation in my hands, I brushed it off at first but then began to worry when the tingling then went to my feet & down my from my knees to my feet at times.
I have also had the symptom that is described as the "MS hug" I never connected that sensation/ pain with the possibility of MS until my doctor considered this a possibility. I just thought I had a pulled muscle or something.
I get bouts of fatigue & weakness, some days it feels as if my limbs are so heavy & It is hard for me to go up & down the stairs of my home.
I've also had some episodes of where I get a burning sensation. This has happened to my left foot & right ear several times. I try to cool the burning feeling by applying a cool rag but that then results in sharp razor like sensations instead of cooling it.
There are also times that I have dizziness & feel as if my ears have been stuffed with cotton balls bc everything sounds muffled & they feel "full."
Also I feel the urge to urinate frequently & once the urge hits I can't seem to "hold it" like I used to.
I believe I have covered all my symptoms. I had an MRI of my brain which was normal. I just had a nerve conduction test & VEP which I should know the results at my next appt when I get the lumbar puncture. Also MRI of spine is scheduled. During the VEP I had to repeat my left eye twice as the tech said the first time was "bad" that was concerning to me, should I be concerned?!
If anyone has any insight, words of advice/ encouragement please share it with me. I know I shouldn't worry because it does no good, but I am just ready to know what is causing my symptoms.
This is my first time posting here. I am just looking for support, thoughts, or advice anyone may have as I am still going through test to determine what is the cause of my symptoms.
A little background info: I'm a 24 yr old female who is overall healthy except for a history of epilepsy (diagnosed 2005) which is well controlled on medication. Also there is history of MS & Lupus in my family.
My symptoms started almost 2 years ago, first with tingling in my face (left cheek, nose & upper lip). I called my neurologist after this went on for 3 days straight, he didn't seem concerned about it so I didn't worry either. This random tingling has occurring on and off since. Around 8 months ago I begin having tingling, numbness, loss of sensation in my hands, I brushed it off at first but then began to worry when the tingling then went to my feet & down my from my knees to my feet at times.
I have also had the symptom that is described as the "MS hug" I never connected that sensation/ pain with the possibility of MS until my doctor considered this a possibility. I just thought I had a pulled muscle or something.
I get bouts of fatigue & weakness, some days it feels as if my limbs are so heavy & It is hard for me to go up & down the stairs of my home.
I've also had some episodes of where I get a burning sensation. This has happened to my left foot & right ear several times. I try to cool the burning feeling by applying a cool rag but that then results in sharp razor like sensations instead of cooling it.
There are also times that I have dizziness & feel as if my ears have been stuffed with cotton balls bc everything sounds muffled & they feel "full."
Also I feel the urge to urinate frequently & once the urge hits I can't seem to "hold it" like I used to.
I believe I have covered all my symptoms. I had an MRI of my brain which was normal. I just had a nerve conduction test & VEP which I should know the results at my next appt when I get the lumbar puncture. Also MRI of spine is scheduled. During the VEP I had to repeat my left eye twice as the tech said the first time was "bad" that was concerning to me, should I be concerned?!
If anyone has any insight, words of advice/ encouragement please share it with me. I know I shouldn't worry because it does no good, but I am just ready to know what is causing my symptoms.
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