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haven't felt better since starting copaxone?

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    #16
    Update on Copaxone x3

    I recently had an MRI after being on Copaxone for a year. I am so grateful about the results. The most problematic lesion was on the left frontal lobe...IT'S GONE!!! Lesions in the white matter harden and do not go away. The MRI from a year ago, prior to restarting Copaxone, showed disease progression in the white matter.

    I asked the ms specialist was I correct in deducing that the disease had "halted;" she confirmed that it had.

    As I stated in a previous post, after approximately 8 months, the horrific sxs I had been experiencing were gone; and, Thank God, have not returned.

    Country music singer Clay Walker (?I think that's hos name), was diagnosed in 1992 and is still performing and completely mobile.

    The research I did in medical journals, documented that 2% of those on this drug had an allergic reaction.

    As anyone with ms knows, it strikes everyone differently. Individuals with this disease know their bodies better than anyone--- so it is up to the pt to agree on the drug that is utilized.

    I respect anyone's decision regarding what/which DMD (if any) to use. I would simply encourage those of you sitting on the fence, to try to wait for your next MRI before stopping the drug. Understand, I am in no way suggesting that anyone having an intolerable reaction wait to stop.

    I hope that this was helpful. Be Well. Shalom, Suzanne
    You never fail, until you stop trying__Albert Einstein

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      #17
      Originally posted by Imagine View Post
      [B]The most problematic lesion was on the left frontal lobe...IT'S GONE!!!
      ...
      I asked the ms specialist was I correct in deducing that the disease had "halted;" she confirmed that it had.
      Suzanne, this is FANTASTIC news! I'm so glad to hear such promising results. I'm hoping for similar news when I get my next set of MRIs in May (which will be 7 months on Copaxone for me), but not really expecting it. I haven't quite seen as much reduction in symptoms yet as you have.

      I've heard you have to be on Copaxone for 6-9 months for it to really reach peak effectiveness. You mentioned in an earlier reply that you saw symptom reduction at 7 months. Can I ask, did you see gradual improvement up to that time, or was it more like things started getting better around that time and it did in fact take a long time to notice improvements?
      Sx since 2007; Dx Oct. 2014. Started Copaxone after Dx...praying that it's working!

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        #18
        not gradual

        Originally posted by malaholic View Post
        Suzanne, this is FANTASTIC news! I'm so glad to hear such promising results. I'm hoping for similar news when I get my next set of MRIs in May (which will be 7 months on Copaxone for me), but not really expecting it. I haven't quite seen as much reduction in symptoms yet as you have.

        I've heard you have to be on Copaxone for 6-9 months for it to really reach peak effectiveness. You mentioned in an earlier reply that you saw symptom reduction at 7 months. Can I ask, did you see gradual improvement up to that time, or was it more like things started getting better around that time and it did in fact take a long time to notice improvements?
        Hey! NO- it was absolutely not gradual. @ about 7 months of consistently taking the drug, some the the "unusual," sxs disappeared--- feeling like I was on fire, itching I cannot describe, hives when going into a store. NOW: I can do full lotus position and get my feet behind my head. These were thing I was doing before I became really sick. I was told during my 10 day hospital stay that I wasn't expected to walk again. Last week: I WENT RUNNING AND MY HUSBAND COULD NOT KEEP UP W/ME!!!!

        The fatigue is still a mega problem; and the cognitive issues are frustrating. Try to be positive and decide that if your results are not positive---YOU WON'T GIVE UP. Please keep me posted. Try some of the conferences Shared Solutions has everywhere. BE WELL
        Shalom, Suzanne
        You never fail, until you stop trying__Albert Einstein

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          #19
          Originally posted by Jules A View Post
          Also worth noting Copaxone really isn't supposed to make us feel better. It is my understanding we are hoping it will delay progression.
          ...
          If they would settle the business stuff so we could purchase Copax or a generic equivalent at a reasonable price, lots of us would feel better!
          Jim S.

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