The one telling you that your neurologists' refusal to investigate NMO may not be the right answer? The one that makes you seek out further specialists, like the neuro-ophth and an MS specialist?
I was rediagnosed with an NMOSD today by the MS specialist. He said you can call it that or spinal optic MS, but that I'm in some middle ground between the two diseases, meaning an NMO Spectrum Disorder. And I'm to stop Tecfidera immediately and prepare to start Rituximab.
I'm both relieved and terrified all at once. I guess I was in a sort of limbo all this time, and only really caught on this year.
Anyhow, if you think something is off, listen to your gut. You may not be right, of course, but keep on investigating until it makes sense. If I had stayed with the neuro who diagnosed me with MS, who knows how blind I'd be before we figured this out.
I was rediagnosed with an NMOSD today by the MS specialist. He said you can call it that or spinal optic MS, but that I'm in some middle ground between the two diseases, meaning an NMO Spectrum Disorder. And I'm to stop Tecfidera immediately and prepare to start Rituximab.
I'm both relieved and terrified all at once. I guess I was in a sort of limbo all this time, and only really caught on this year.
Anyhow, if you think something is off, listen to your gut. You may not be right, of course, but keep on investigating until it makes sense. If I had stayed with the neuro who diagnosed me with MS, who knows how blind I'd be before we figured this out.
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