Those of you on Aubagio - did you get a 30 day or 90 day supply

[emily06]

I had to leave work back in 1995 due to my MS. So my insurance is the dreadful Medicare with Medicare Part D for drugs. SO the Aubagio is costing me a fortune ($1900.00). 1 to 1 found a foundation to help me with a small part of it (but that still screws up my drug insurance coverage putting me in the doughnut hole quickly meaning all my other non-MS drugs I will have to pay for out of pocket).

Do you get a 30 day supply at a time (or I guess that's a 28 day supply due to Aubagio packaging) or do you get a 90 days supply at a time?

[loopey]

I can only get one 28 day supply at a time. My pharmacy has been very strict about it.

[emily06]

Cost changes every day - with my insurance

And the price is not determined until the prescription is filled. Now just doing a test check at 3 different preferred pharmacies of my Pt. D drug plan I see that the pharmacy that I have it set to fill with is not the cheapest. And since my dr. hasn't filled out all the necessary paperwork I think there is time to change. But again these aren't exact costs at this point.

[technogay]

Financial assitance

I seem to be very fortunate. I am on Humana Medicare and working with 1 on 1 plus my neuro. my Aubagio is costing my nothing. Plus Humana Medicare Gold plan has a zero co-pay also. You may want to check that out. I live in SC, not sure if it's the same in all states.

[technogay]

28 day

28 day supply seems to be the norm. That's all they will release.

[emily06]

That's great for you!

That's how I thought it would be for everyone listening to the local Genzyme rep. Boy is he wrong.
I have the original medicare with a Part D drug plan with Humana. I have 0 co-pay for my mail order pharmacy but it doesn't cover the Aubagio. It's a Tier 5 with my insurance. And we're not able to switch plans during the year.

[technogay]

Who is your mail plan proovider?

RightSource is mine. It's a tier 5 for my plan also. They put me onto the Specialty Pharmacy network.

[emily06]

More importantly

how are you doing on Aubagio Technogay?

[technogay]

Aubagio status

I've been on Aubagio for a little more than a year. The first 3-4 months were really awful. Neausua, dizziness,headaches, diarrhea, etc. Had to stop for 2 weeks. My neuro then tried his own "titration" routine. 7 mgs for 5 days, then 14 mg every other day for 7 days, then 14 mgs everday. He also has me taking it at lunch time after I eat. If I feel any intestinal issues, I take a Pepto Bismal tablet. So far it seems ok. Having some issues with my feet, numbness, phantom swelling, tingling. Had a Nerve Conducive test and diag. with Neuropathy. Gabapentin (300mgs 3xday).
I have issues with blurred vision which I had prior to Aubagio but, it seems to increased. Went to a Neurological Ophthalmologist, he found no correlation.
The real issue is that I am getting the drug for zero co-pay. I hate that finance is causing be to determine which MS med to take. The phrase between a rock and a hard place keeps running by life.

[pb909]

I get a 3 month supply thru CVS/Caremark Specialty Pharmacy via mail, also get the Aubagio copay assistance since my employer provided coverage copay is higher than their max.