I am having what I could call recurrent ON, and can find data about that phenomenon, but not what is actually meant by recurrent. How often, mow many times, etc.--I can't seem to find info on what is statistically normal for someone with MS. (If you have links, I would love them!)
I have an appointment with the neuro-ophthalmologist in a few weeks, and I will be asking her, of course. In the meantime, for those of you who get ON, how often do you get it?
Me:
Jan 2007 onset of MS, misdiagnosed
Nov 2011
June-ish 2013
Nov 2013 bilateral, much worse in right eye
March 2013 bilateral, much worse in right eye
April 2013
I mostly get it in my right eye, but even before the bilateral events showed extensive atrophy to the optic disc in my left eye, so I've clearly had it subclinically at least once, probably more. I also suspect I've had at least 4 or 5 more mild bouts of ON that I can recognize in hindsight, but can't really confirm, most of which in the past two years.
How about you guys? How often do you get ON? How many times have you had it? I know we're all our own little anecdotes, but I am curious and would love your input.
I have an appointment with the neuro-ophthalmologist in a few weeks, and I will be asking her, of course. In the meantime, for those of you who get ON, how often do you get it?
Me:
Jan 2007 onset of MS, misdiagnosed
Nov 2011
June-ish 2013
Nov 2013 bilateral, much worse in right eye
March 2013 bilateral, much worse in right eye
April 2013
I mostly get it in my right eye, but even before the bilateral events showed extensive atrophy to the optic disc in my left eye, so I've clearly had it subclinically at least once, probably more. I also suspect I've had at least 4 or 5 more mild bouts of ON that I can recognize in hindsight, but can't really confirm, most of which in the past two years.
How about you guys? How often do you get ON? How many times have you had it? I know we're all our own little anecdotes, but I am curious and would love your input.
Comment