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    Very dissapointed

    I am not Dx and today I had my 1 year follow up with my Doctor at the ms clinic at St.Mikes in Toronto. The doctor who I thought was a very pleasant man the first time I seen him last year was a complete *** today. Last year he told me probable Ms this time he told me possible Ms. Than he went on to tell me that I have such a mild case that I will never have any future problems, I asked him how he knew that and he said he just knows. So not only is he a Neurologist he can predict the future.

    He said my MRI is stable which was redone in sept 2013 brain only no contrast. I tried to discuss new symptoms which he wanted no part of hearing. My neuro exam was normal. And im very happy that things seem to be stable and that I don't have any major problems. He increased the amount of gabapentin and asked me if I wanted to come back in a year? Really? Than he said to only come back if im gonna be happy, HELLO why would anyone be happy with such crappy care?

    Could someone please recommend a doctor that is going to be willing to help me either rule in MS or rule it out in Ontario I don't care how far I have to drive. I don't want to waste anymore of my precious time on these doctors that don't care. This is my future that im worried about and if I have ms I want treatment sooner rather than later.

    Oh and the ms clinic at st.mikes in Toronto is filthy!!

    #2
    Yes me too...

    Originally posted by miss36 View Post
    I am not Dx and today I had my 1 year follow up with my Doctor at the ms clinic at St.Mikes in Toronto. The doctor who I thought was a very pleasant man the first time I seen him last year was a complete @ss today. Last year he told me probable Ms this time he told me possible Ms. Than he went on to tell me that I have such a mild case that I will never have any future problems, I asked him how he knew that and he said he just knows. So not only is he a Neurologist he can predict the future.

    He said my MRI is stable which was redone in sept 2013 brain only no contrast. I tried to discuss new symptoms which he wanted no part of hearing. My neuro exam was normal. And im very happy that things seem to be stable and that I don't have any major problems. He increased the amount of gabapentin and asked me if I wanted to come back in a year? Really? Than he said to only come back if im gonna be happy, HELLO why would anyone be happy with such crappy care?

    Could someone please recommend a doctor that is going to be willing to help me either rule in MS or rule it out in Ontario I don't care how far I have to drive. I don't want to waste anymore of my precious time on these doctors that don't care. This is my future that im worried about and if I have ms I want treatment sooner rather than later.

    Oh and the ms clinic at st.mikes in Toronto is filthy!!
    I went down to the MS Clinic at St. Michael's Hospital in Toronto and I met with 2 neurologists while I was there. So I asked them right out "Do I have MS or not?" He told me that my last episode could have been some random isolated incident and then continued to say that Tecifidera is a good medication to treat MS. I left there with more questions than answers. They neither confirmed or denied a MS diagnosis.

    I have seen 5 neurologists in the last 4 years and 4 of them from last October. 2 neurologists diagnosed probable MS, 2 diagnosed me with MS, and 1 neurologist said no MS.

    My family doctor and the natural medicine doctor both say MS. I am so confused. My MRIs state demyelination process. I have experienced double vision, fatigue, bladder dysfunction, kidney problems, depression, weakness in my limbs, muscle spasms and burning sensation in my back, cognitive and memory problems, difficulty writing.

    I just hate the doubt…

    And yes it was a very unattractive facility which seemed disorganized. Someone booked me to see the same doctor on 2 separate appointments…fortunately I asked and was spared another visit.

    Overall, it was not a good experience.

    Comment


      #3
      I have had the complete opposite experience there.
      Everyone I have dealt with has been kind, patient, caring and accessible. I can (and have) emailed nurses, the secretary and OT and have had a response back within the day.

      That part of the building is old (which there is nothing they can do about it aside from demolishing), but I have never seen it dirty.

      Comment


        #4
        My first ms clinic appointment was there, and I was less than impressed as well. They are pretty dismissive unless it's obviously ms. I go to Kingston now.

        Comment


          #5
          My neuro (not a MS specialist) sent me there a few years ago to be sure he didn't miss anything. I had the worst experience EVER with a doctor there. Won't go into details but it ended with him KICKING MY CANE and asking what it's for (he knew I am blind in one eye, the other is dim). He also berated his secretary in front of me.

          I love the entrance to the clinic too. Coming via subway, the entrance where I go in is in the "Emergency Psychiatric" wing!

          There is one doc there, who I had the pleasure of being treated by in the ER, named Dr. Selchen. He is so pleasant. If you get the chance to see him, please take it, he is amazing.

          Good luck!

          Jen
          RRMS 2005, Copaxone since 2007
          "I hope to be the person my dog thinks I am."

          Comment


            #6
            Originally posted by Cat Mom View Post

            There is one doc there, who I had the pleasure of being treated by in the ER, named Dr. Selchen. He is so pleasant. If you get the chance to see him, please take it, he is amazing.

            Good luck!

            Jen
            Umm ... well ... it does depend on the day, I think ... all I will say .

            Comment


              #7
              wish u lived inTEXAS, I have a great neuro that diagnosed me first visit with MS. AND WAS GETTING MEDS within 2 wks.

              Comment


                #8
                CLP2014

                Originally posted by CLP2014 View Post
                wish u lived inTEXAS, I have a great neuro that diagnosed me first visit with MS. AND WAS GETTING MEDS within 2 wks.
                I realize this thread is a little old, however I live in Texas and desperate to find a Neuro that can assist me or see me here in the near future. I have looked but so sick of seeing Doctor after Doctor with my illnesses. I am afraid to book another appointment with a Doctor without having good references on him/her. I really need help, I am ready for a GOOD Doctor. One that will conduct the testing and treat accordingly. I am on so many meds, I can open a pharmacy it seems.

                I am sure you will get this message, since we join the message boards for help and this one is specific to us and we will surely still have MS for a while, but anyone that has a reference to a Good Neuro that specializes in MS, could just share, I would greatly be appreciative.

                I have major Cog Fog and my brain is not working when it comes to talking or typing out a message, so please excuse anything that seems a little, or a lot, jumbled.
                Thanks to anyone here that can help me. This is one of my greatest issues is finding a good Neuro that can help me with this. I am a mess.

                Elizabeth

                Comment


                  #9
                  Hi Elizabeth - I copied your post here and placed in our "Getting to know you" forum. I also changed the title to read "Recommendation for a good neuro in Texas" so it can be seen better!

                  You will find it here - http://www.msworld.org/forum/showthr...19#post1467419

                  Good luck in finding what you need!
                  1st sx '89 Dx '99 w/RRMS - SP since 2010
                  Administrator Message Boards/Moderator

                  Comment


                    #10
                    I'm scared

                    I have an appointment with a neurosurgeon at St. Mike's in February. I read reviews OMG and I waited 5 months too!!

                    Comment

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